A Life Worth Living


Over the summer, 19 people with disabilities were brutally murdered and 26 were injured in a facility outside of Tokyo. Some of the people killed were 70 and some 18, just two years older than my brother Robb. The murderer had worked at the facility, and after he killed his victims he turned himself in saying, “It would be better if disabled people were dead.”

When I first saw this I did not know what to think, let alone what to write. That statement is so full of hatred; all I can think is the person who said it should be behind bars. Because of my brother and all of the people I know with special needs, this hateful phrase takes on a new meaning for me. Look at this phrase again, but replace “disabled people” with “children,” “siblings,” “friends,” “athletes,” “artists,” “teachers,” “students,” “humans,” “brothers.” It brings me to tears thinking someone might wish either of my brothers or any of my friends and family dead, regardless of if they have special needs. This man doesn’t look at people with disabilities as equals. Instead he acts as if they are less than, as if — because they may see the world differently or have more challenges — they have no value and can’t live a life worth living.

A life worth living.                

This is a phrase I have always been afraid to write about because many people would agree with this man, they would agree people with special needs do not have lives worth living. If that is the case, though, what is a life worth living? Going to college, getting married, getting a job, maybe having some kids, retiring, and the inevitable death at the end of it all? If that is a life worth living, I know of many people with special needs who have checked the boxes, completed the list, done what is supposed to be done.

I understand that sometimes when people say persons with disabilities do not have a life worth living, they do not mean all people with disabilities, but specifically refer to the people who might be in community living, have needs that make them forever dependent on others, people like my brother. For some reason people think that going into community living makes life not worthwhile, but why? If that is the case, why do we have places like boarding school, colleges, even retirement communities where community living is praised, even sought after. After all, people with special needs living in communities together are not just staring at walls the whole day; many get jobs in their larger communities. And potential jobs in service or recreation may seem small, but they have a big impact on the community. Why do we value these jobs as less than those of someone who, for example, manages wealthy people’s money or someone who created a toy that became popular by luck, when these jobs may not even contribute to society as much? Because they pay more? 

Something tells me no one is actually talking about jobs when one says people with special needs do not have a life worth living. They seem to think the things they do are meaningless when many times they are the same things we all do. They will spend time with friends in their community, or with friends and family who come and visit. They do things they enjoy like everyone does. Some participate in Special Olympics where people can  do anything from swimming, like Robb, to singing.

But I am sure many people still do not think it is a life worth living, even though it is a full one. Many of you are probably stuck on that one thing people like my brother might not have too much of: independence. For you, all I have to say is that no one is completely independent. If you think you’re going through life all on your own… then you clearly have not looked around. There will always be people there for you, and though some need more people there for them than others, none of us are alone. Also, independence is relative. My brother is independent when he uses the bathroom on his own, changes by himself, and every day he becomes more and more independent. Also, even people who cannot move without help have independent thoughts and ideas. No one can take internal independence away from another. 

sister and brother selfie

There is one thing needed to live a worthwhile life, though, something that cannot be disputed. It may sound silly, but I would like to quote John Lennon: “The key to life is happiness.”

Happiness will never be found everywhere, and you may not be happy about your amount of independence, your job, your living situation, but if you can have that moment where you can’t help but smile I believe you have achieved a life worth living. If any of you could look at my brother when he is doing one of his low belly laughs, tell me he should be dead because his life isn’t worth living.

I’m afraid you haven’t heard: Life was never meant to be easy, but as soon as you are happy it is worth it, every second.

This article was originally published on cdspg.

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