Live Video: Carla Lohr - Spina Bifida


Carla Lohr is an adult living with spina bifida, as well as a mother to a young man with spina bifida. She’s an online professional who has worked at several websites, including The Mighty, and volunteered at Shriner’s Hospital for Children facilitating a support group for parents of children with special needs.


Find this story helpful? Share it with someone you care about.


Related to Spina Bifida

Presidential seal.

When People Dismiss My Fear of Losing Disability Services Under a Trump Presidency

I have had to defend myself for what seems like all day over my hesitation about the future. I just want to state my case and be done with the election conversations for a while. I am a person, first of all. I’m someone’s sister, daughter, niece, aunty and someone’s special somebody. I am not [...]
Emily with her brother.

4 Ways My Brother Is My 'Unsung Hero' as a Person With a Disability

Siblings in the family of an individual with a disability sometimes get a rough deal. Routine hospital appointments, illnesses and various operations or interventions mean that the child with the disability, through no fault of their own, often gets more of their family’s time, attention and resources. Yet brothers and sisters regularly deal with these [...]

When a Tinder Date Wanted to 'Fix' My Spina Bifida

The topic of love and relationships can be a delicate subject for anyone. But for someone with a disability, it can be particularly fraught and is often laden with many deep and dark “what ifs.” Meeting the right someone is challenging in a day and age where people are so heavily consumed by their jobs [...]

What I Didn't Know Before I Met My Daughter With Spina Bifida

I read an article recently (My Child’s Disability is Not a Tragedy,) which threw me back to my daughter’s prenatal diagnosis of spina bifida when I was 20 weeks pregnant. Here’s what I remembered: at that moment, I did believe it was a tragedy. It felt like a tragedy. It hurt. It was terrifying. I didn’t know [...]