Katy Brennan - Ehlers-Danlos Syndrome



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Related to Ehlers-Danlos Syndrome

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What a Person With Ehlers-Danlos Syndrome Has to Think About

What does living with EDS look like? Medicine for all kinds of pain, migraines, nausea. Knee, ankle, finger braces and back up braces in my book bag and car. Compression socks and essential oils. Books and handouts for relearning how my joints work. All kinds of physical and occupational therapy tools to work with. What [...]
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The Aftermath of the Holidays With EDS and POTS

For many people the holidays are full of fun and excitement and leaves many in happiness and joy from the recent time spent with family. My holiday experience was just the same only with a few complications. The day before Christmas Eve was full of shopping for baking supplies and even picking up a couple [...]
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Being Comfortable With the Uncomfortable

Invisible illness is a term those affected use to explain that while we may look “put together” on the outside, inside we are falling apart. In my case, I am literally falling apart. I have Ehlers-Danlos syndrome hypermobility type. I used to be able to go out in public and blend in with the crowds [...]
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My Ehlers-Danlos Syndrome Diagnosis Gave Me Community and Peace

When I was diagnosed with Ehlers-Danlos syndrome (EDS) 18 months ago, I threw myself into the EDS world, the chronic illness world and the blogging world. I soaked up all the information I could find and shared my own journey in deep and vulnerable ways. Without a diagnosis, I had spent 30 years in the lonely, barren [...]