sad woman with worried stressed expression brain melting into lines

What My ADHD Looks Like

106
106

I once read, “If you’ve met one person with ADHD, then you’ve met one person with ADHD.” I think this is pretty accurate. ADHD is not a one-size-fits-all disorder, and in fact, it is pretty complex. It requires a multifaceted diagnostic approach, and its presentation can vary from person to person.

I have heard many people with ADHD say that in order to focus, they need complete silence. Background noises are too much of a distraction to concentrate. However, I am the opposite. I need background noise. When I am doing homework, or writing, even when I’m trying to fall asleep, I always have the TV on or music playing.

I’ve met people with ADHD who are chronically early for everything. This is something I can not relate to at all. If I ever somehow miraculously leave the house in time to get somewhere early, I will then inevitably forget something imperative to my journey, requiring me to turn around and go back home to get it, causing me to arrive late. Every. Single. Time.

Here are some of my personal “quirks” and life experiences that I associate with my ADHD. Maybe you’ll find that you can relate to a few of these.

I can turn anything into an analogy.

I will dive right into new projects before I research the steps required to complete them. It is not until things start getting a little tricky that I will look into the directions — and inevitably end up having to go back a few steps.

When I discover something that interests/inspires me, I become obsessed. I can spend hours on end learning everything there is to know about it and can produce grandiose ideas related to my newfound “calling.” Until I get bored. Then I’m over it.

I work well in a crisis. It’s the mundane everyday tasks I find so challenging.

I feel things very deeply. A tragic news story can consume my thoughts and emotions for days. On the other end, show me a story about human acts of kindness, strength, or perseverance, and I’m reduced to a blubbering pile of emotions with a restored faith in humanity.

I love a challenge. Tell me something is impossible, and I am immediately interested in proving you wrong. It’s as if those words are an ignition switch to my brain.

I am a problem-solver, a puzzle-decoder, an out-of-the-box thinker. Nonlinear thinking leads to nonlinear solutions.

I secretly love finding broken toys in my house because I can throw them away, and that means less clutter!

I sometimes feel like a fraud and that the bottom can drop out at any time, exposing just how fraud-y I am. I feel this way far less often than I used to. I have come to accept that I really do deserve all that I’ve worked so hard for, and when people compliment me, it’s because I really am smart/talented/special, and I’m not just fooling everyone.

When I try to describe what ADHD is like to me, I compare it to having 22 different radio stations on at once and trying to learn the lyrics to one song. Try it.

I also say it feels like my brain needs glasses. (I love me some analogies!)

I am terrible at small talk.

If I have an unstructured day but I know there is plenty I should/could be doing, I become overwhelmed and opt to just stay in bed instead. In order to avoid this, I actually have to prioritize my to-dos and write out a schedule for myself.

I’m not afraid to try something new and actually thrive on changing things up a bit regularly.

If I love something, I end up buying a ridiculous, unnecessary amount of it (makeup, phone cases, “buttery soft” leggings, picture frames, books, office organizers, etc.).

I am completely oblivious to lights being left on, clothes piling up, or hearing the home-shopping network blaring from an empty room somewhere in the house, but I cannot stand for a door to be left open in a room I’m in. If someone pops into my office while I’m deeply engaged in a writing project and they forget to close the door on their way out, I cringe. I may even yell, “Get back here and close that door!” Even just opened a crack, it sends my blood pressure up a few notches. I have no explanation for this one.

I’m pretty sure my brain is turned off until the “final hour.” My best work, strongest ideas, and most creative solutions have always been produced when it got down to the wire.

This list can go on for days, and I’ll save emotional reactivity and lack of impulse control for their own separate post. I’d love to hear some of the traits and qualities you associate with your ADHD.

Image via Thinkstock.

A version of this post originally appeared on Hack Rack.

We want to hear your story. Become a Mighty contributor here.

106
106
TOPICS
JOIN THE CONVERSATION

RELATED VIDEOS

The Adderall Stigma

100
100

My daughter turned 18 recently and I decided it was time to put the baby album together I’ve been meaning to get to for quite some time now. When I pulled out the boxes and boxes of photos and mementos, I came across some of my old report cards and yearbooks. As I went through them, I noticed a common thread woven through the words of my teachers and friends alike. Elementary school report cards had comments such as, “Jessica is very bright, I wish she would live up to her potential” and “Unfortunately, Jessica had a lot of difficulty following the classroom rules, this quarter. She simply will not stay in her seat!” A yearbook entry from a girl in my trig class read, “Jessica, you are so fun and so funny, it was great having this class with you. Two full semesters of trig, and I don’t think you’ve brought your book to class once!”

Wow! The writing has always been on the wall. For some girls and women, ADHD may present itself in ways that are not typical of the common public perception. This was not the case for me. Apart from being female, I fit the stereotypical image of what ADHD looks like, to a T. Hyperactive, impulsive, forgetful, scattered, the list goes on. Unfortunately, ADHD was not as widely understood in the 1980’s, and because my grades were always good, I don’t think anyone felt any reason to intervene, other than to tell me I really needed to get my act together.

As I got older, and my behavior shifted from being “hyper” and “antsy,” to risky and at times even reckless. I got into three car accidents within my first year behind the wheel, and was subsequently dropped from my parents insurance plan. I was very well known by the high school deans as well all of the local police officers, several of the county judges and the assistant district attorney. They were all quite fond of me, as I was incredibly charming, but I was pretty much always in some sort of trouble, the reasons varying from traffic violations, to truancy, to underage drinking. It was not that I was some troubled teen with compromised morals, it was that I was simply not able to think through my decisions to do whatever it was I pleased. (You know, that voice that tells you, “Sounds like a great time, but my desire to avoid facing misdemeanor charges far outweighs my desire to  partake in this risky behavior.” Yeah, I didn’t have one of those.)

At that point my mother knew I had ADHD, and attempted to seek treatment. Unfortunately, the doctor we met with was adamant children should not be medicated for behavior problems, and basically insinuated that my mother should do a better job of keeping me in line. And, well, you know… doctors know best.

It was not until I was 25 that I once again sought treatment for myself. I was a nurse, I worked downtown and there was a great neuropsychologist in the area that performed an extensive analysis that confirmed the obvious; I did in fact, have ADHD, and it was pretty significant. He gave me the name of a psychiatrist and I was finally prescribed a medication that would forever change my life.

It is difficult to describe what Adderall does for me. I like to say that it’s like my brain finally got glasses after years of poor vision. Unmedicated, it’s as if my brain is stuck between several radio stations and I’m getting pieces of a couple songs, a talk radio show, the Spanish station and a whole lot of static. Medicated, my brain can fine-tune to a single station, giving me clarity and focus. It has enabled me to follow through with tasks, focus on conversations I’m having, and work more strategically and fluidly. It helps me perform the tasks most people do automatically and with ease. It has made my life more manageable, which in effect benefits my children, my husband, my patients and anyone who may happen to be on the streets while I am driving.

It also happens to be one of the most widely abused prescription drug in America.

There is a stigma attached to Addreall, the medicine that has lifted me from the fog and chaos that was once my life.

Undiagnosed ADHD, is inevitably associated with a risk for decreased self-esteem and feelings of shame . All those years of hearing “why can’t you just…” or “what’s wrong with you?” along with the obvious frustration that we cause our loved ones on a fairly consistent basis; it starts to chip away at our  confidence, and we start to believe what we hear… that clearly there must be something wrong with us.

Fortunately, proper treatment has enabled me to work through all of those feelings, and I have really learned to own my ADHD. I no longer feel the need to apologize for what I can not control, and I realize I will be a life long “work-in-progress,” and I love it! Knowing that I will continue to move forward in terms of my personal development is empowering. It’s like, the best is always yet to come.

Yet… I dread the monthly refill requests. And I rarely discuss with anyone, the fact that I take Adderall.

From the receptionist at my doctors office, to the pharmacist, to the people who may happen to see the prescription bottle in my purse, there is a level of judgement by others attached to taking this medication.

A few months ago, I called my doctor’s office to get my monthly refill. The receptionist looked up my chart and saw that the last refill was less than 30 days ago. She told me I could pick it up, but it would be dated for the following day. However, there were 31 days in that month, so this would cause me to miss a day of my medication. I tried explaining this to her, but she was determined to keep my “drugs” away from me for an extra day; out of spite. When I asked to talk to the doctor, she said she’d have him call me. I am assuming, he either set her straight, or she realized that she was being a jerk, because rather than him calling me, she called me back and said my prescription was signed and dated appropriately.

That same day, I dropped off my prescription at the pharmacy and the technician told me it would probably be a few hours because they were busy. No problem. But when she saw the three wild little kids in the back seat of my car, she looked at me and dryly said, “looks like you probably need it now, don’t you?” As if it were a “fix,” my answer to the demands of suburban mommy-hood.

My own friends will ask me how I was “able to get a prescription” and for the name of my doctor, as if anyone off the street can just walk in and request some “uppers.”

Don’t get me wrong, I understand the importance of controlling highly abused medications. I am a nurse, I am quite familiar with the devastating effects of substance abuse and addiction. However, the misunderstanding of the use of this medication for its intended purposes, contributes to the skepticism of ADHD, and mental illness in general.

I am a stereotypical, text-book version of ADHD and a thoroughly informed medical professional. If am still made to feel that I am being judged for taking a medication that has helped me to manage an otherwise often debilitating condition, then imagine the difficulty it must take for an undiagnosed woman with an atypical form of ADHD, and no medical background, to make the decision to seek treatment for herself.

Its heartbreaking to imagine how many people there are, untreated and suffering because of the fear of judgement or discrimination that come along with the diagnosis and treatment of any mental health issue.

I am hoping that in writing this, I am able to contribute in some way to the dismantlement of the barriers to recovery for those suffering with undiagnosed or untreated ADHD, as well as any other structurally stigmatized conditions and  illnesses, that can and should be treated. By hiding my ADHD or being silent about my treatment, including the fact that I am medicated, I am only contributing to the obstacles presented to those in need of help.

The fact is, that millions and millions of Americans are affected by mental health conditions. It is estimated that more than half of them are not receiving proper treatment. If you feel that you may be struggling with a mental health condition of any kind, please know that you are not alone. You are far from being alone. There is help, and getting the help you need, is OK. It is more than OK… it is imperative.

Editor’s note: This piece is based on an individual’s experience and shouldn’t be taken as medical advice. Please consult your doctor before starting or stopping medication.

Follow this journey on Hack Rack.

We want to hear your story. Become a Mighty contributor here.

Image via Thinkstock.
100
100
JOIN THE CONVERSATION

When You Feel Like You Have to Hide Your Real Self to Fit In

130
130

I am in crisis again. I am old enough now to know that I can weather it, but it’s still painful and discouraging. This will be one of those almost-silent eruptions where just a small part of the messiness breaks the surface. I’ll have done something ill-advised; for a moment, I’ll have been the real me. Most people would shake the moment off and carry on, but for me it opens up a familiar vacuous hole inside that only ever partially heals.

I have ADHD, anxiety and depression. I have been in the same relationship for 13 years. I am a committed and attentive father to a son with autism spectrum disorder. I have a career that pays north of the national average.

I’ve been called “high-functioning.” Lately, I have realized that, for me, this term means “good at hiding.” I do a pretty believable version of “normal.” However maintaining the façade is always a strain, and the better I get at it, the more, well, “weird” my behaviour seems when the façade crumbles. And when it does crumble, dealing with the consequences drains my “happiness” reserves.

During my crises (whether mini or massive), I experience a genuine sense of heartbreak. I weep for the child I was, and still am, who just wants to be accepted and understood for who he really is. I feel deeply troubled that in this enlightened world, people who are not neurotypical often feel required to hide their real selves. These questions have become more prescient as I seek to raise and defend a wonderful complex boy with his own challenges. I wonder: Would I consider asking my son to hide who he really is to fit in? Not even for a moment.

One day, though, my son might face challenges something like my own. Given the tumultuous life I’ve led thus far, what advice would I give him?

The author with his son, bicycling

Firstly, I would tell him he is beautiful, brilliant and valuable, and that the world needs more people like him, not less.

Secondly, I would tell him I love and accept him unconditionally and to be courteous to people who don’t understand him, but not to waste his time with them. He will find his place in things; it might just take some time.

Thirdly, I would tell him that when we struggle, we grow. We find something that pulls us through the hard times. I’ll tell him how I met his mum and she saw who I was and loved me — and how he came along and did the same.

We want to hear your story. Become a Mighty contributor here.

Image via Thinkstock Images

130
130
TOPICS
JOIN THE CONVERSATION

How I Was Diagnosed With ADHD at 40

185
185

I was a bright kid growing up — not as smart as my brother, a genius with a photographic memory — but I studied hard and knew how to perform well on exams and behave well in class, so I was successful academically. I wasn’t an athlete or in the popular crowd, but in academics, I found my niche. Graduated near the top of my high school class and from college with honors, passed the Law School Admissions Test in the 97%, passed the entire CPA exam in the first setting, did well in a highly ranked law school. You get the idea.

Yet in spite of my academic successes, there was always a part of me that didn’t measure up. I questioned myself constantly.  I struggled to stay on top of things, to stay organized. Despite my best efforts, my room was always a mess, my car was dirty and important items went missing. I hid it from everyone (well, except for my roommates, because, as it turns out, you can’t magically make yourself organized by simply saying “I’m a neatnick.” They find out eventually that you are in fact a clutteraholic).

I couldn’t understand how someone so “put together” could have this dirty secret.

For many people, disorganization like this might not be a problem. But I grew up with parents who were as organized as the day is long (maybe longer). It is truly their gift. Their house, even with growing and messy children and their friends in and out, always looked like a model home. Always. Anything less simply wasn’t acceptable. And organization comes easily to both of my parents. You walk into their house and just breathe a sigh of relief because there is not a bit of clutter anywhere. They still can’t understand how someone can keep a messy house or not balance a checkbook. It is all a matter of self-discipline, they say. They didn’t used the word “lazy” to describe people who can’t accomplish such tasks, but that was the description I internalized.

I have spent the better part of my adult life feeling like a failure, feeling like my house will never be clean enough because it’s not ready for company at the drop of a hat. Embarrassed that I struggle to complete tasks and have 15 million “really awesome ideas” I never get around to bringing to fruition. Frustrated that my car is a mess, my purse is a mess, that I, by extension, am a mess.  Confused that I can’t seem to focus on anything anymore.

And then, my daughter happened. My sweet, beautiful, spunky daughter. And she was a mess. A hot ball of fire running around, with a mess following in her footsteps. She didn’t care that she was dirty, or that her room was a mess, or that she hadn’t done her homework. She wasn’t defiant about it – she just got sidetracked by life. And she did everything late – she talked late, she wrote late, she read late. But she eventually got it. All in her own time. And, now, at 9, she is reading above grade level. But school has been such a struggle for her. She does OK academically, but she works hard for that OK.

School was always a struggle for my husband. He has so many gifts, but God love him, academics aren’t exactly among them. So I thought, she’s just like daddy. School is going to be a struggle. We just have to push her along to get her out of school, and she can find a career in the arts where that kind of stuff doesn’t matter.

And I really believed it. I believed my daughter just wasn’t capable of more — that underperforming was the best she could do.

Mom and daughter smiling

 

 

Three weeks ago, we had my daughter tested for ADHD. The first thing the psychologist said to me when she went over her results was, “Were you in GATE (Gifted and Talented Education) when you were a child? Because your daughter should be.” I cried. I love my daughter so much, but in my own ignorance, I had sold my daughter short. It’s not that she isn’t smart. She’s actually very, very smart. And so incredibly capable. But her ADHD means her brain doesn’t get what it needs to help her function to her optimal abilities. And all the organizational seminars and tutoring in the world won’t necessarily change that. She is really smart child who performs below average. And she has so much anxiety about it – because she knows she is capable of better, but she can’t consistently produce better.

I now understand how many girls with ADHD go undiagnosed for so long. My daughter was one of them. Gifted girls who are underperforming, and no one knows why. She was a good kid with no behavioral issues. In my research, I am learning that these are the ones who so often go undiagnosed.

In the wake of her diagnosis, I had myself tested as well.

And I have the dubious honor of having the highest ADHD testing score of anyone in my psychologist’s history. True story. The psychologist actually asked me, “How have you been able to function for so long?” All the things I have internalized for so long – all the things I thought of as failures, as laziness, as just not enough self discipline — I was wrong. Completely wrong. My brain is just wired differently. What an incredible gift to realize this. I only wish I had learned it at 9, instead of at 40. If only I had known then what I know now, maybe my self-talk would have been different all these years. Maybe I would have reached out sooner, would have tried to stop managing it with just “better organizational practices.” But hindsight is 20/20.

Mom and daughter kissing

At this point, all we can do is learn from our past and make our futures better. For my daughter and I, that means finding the right medication to help us be the best we can be. And, maybe, in opening up about our experience, we can help the mother of another little girl somewhere. Maybe we can help her spot a diamond hiding behind ADHD.

We want to hear your story. Become a Mighty contributor here.

185
185
JOIN THE CONVERSATION

Having a Child With ADHD Has Made Me a Better Person

95
95

It’s no secret parenting is hard work. When you have a child with ADHD (attention -deficit/hyperactivity disorder), parenting can be complex. It’s been almost two years since we found out my 7-year-old has ADHD. Every day is a rollercoaster for us filled with ups and downs. When my child wakes up in the morning, I never know if she will be excited to go to school and see her best friend or have a meltdown. When it is time to get ready for bed, I never know if she will happily get into her pajamas and be excited about the story I’m going to read to her or say she didn’t have enough time to play that day. My child is extremely unpredictable and highly sensitive. But I am realizing our challenges are making me a better person.

Having a child with ADHD has made me more patient. Parents of children with ADHD understand their child’s brain works differently. When I ask my child to put her shoes on and five minutes later, her shoes still aren’t on because she got distracted by a toy that was next to her shoes for example, I do my best to not lose my temper. I know she is not a bad kid or a trouble maker. I know she is not deliberately trying to get a rise out of me and make me angry. Like many children with ADHD, my child lives in the moment. All that matters to her is the present, which is actually something I envy about her. I remind myself of this, push away the negative words that were about to come out of my mouth, and practice patience, patience, patience.

Having a child with ADHD has made me more compassionate. There has been countless times my child has had a meltdown in public. Whether it was because she became frustrated with a word search on a children’s menu at a restaurant or she was having a hard time waiting her turn to go down the slide at the park, I have felt the eyes of judgmental parents on me and my child. They may think my child is giving me a hard time, but the truth is my child is having a hard time, and the rude stares and eye rolls are only making it worse for her. That is a truly awful feeling, so when I am in public and I see a child throwing a “tantrum,” I never ever judge the parent or the child. I honestly have nothing but compassion and empathy for them, which is something I strive to instill in my child.

Having a child with ADHD has made me more responsible.  I have always been a pretty responsible person, but I feel like since I became a mother, I am more of a scatterbrain and am constantly forgetting things. My child’s ADHD diagnosis has forced me to become more responsible and organized, as well as a planner. For example, it is my responsibility to make sure my child takes her medication every morning, and there has been a couple of times when I forgot to give it to her, but I created a system that works well for us, and she hasn’t missed a dosage since. I’m also responsible for making and taking her to appointments with her psychiatrist and behavioral therapist, as well as practicing what she was taught. I’m on top of things with school, and I am in constant communication with her teacher. I now think and plan ahead because life is unpredictable and you have to be ready for the unexpected. I know to always be prepared.

Having a child with ADHD has made me more creative. It is no secret that children with ADHD have a knack for thinking outside the box, and that is one of the many things I love about my child. She’s able to see and understand what many others can’t and use her fierce creativity to make masterpieces, shattering the stereotypes that children with ADHD are “dumb” or “lazy.” When she is focused, particularly if she is hyper focused, she can write entire stories, create origami animals, and invent intricate games. The list goes on and on. She has inspired me to tap into my own creativity and make things I never thought I could. For her birthday parties decorations, for example, I decided to forego Pinterest and use my own creativity to turn our home into her dream birthday party. Being creative like my child is so much fun, and it is something we love doing together.

Having a child with ADHD has made me more easy going. When my child first began getting homework in kindergarten and we didn’t know she had ADHD, I would make her sit at her desk and stay there until she completed her homework. Thinking back now, I feel like I was the worst parent ever. That must have been complete torture for my child. After her ADHD diagnosis and researching a lot about how her mind works, I understand her better. I am much more lenient and easy going with her. I let her decide where she wants to do her homework, whether she is sitting at her desk on a wiggle seat, standing next to the kitchen counter, or laying on the family room floor. I let her decide the order she wants to complete her homework in. If she needs breaks, I let her take them. If she wants to listen to music while she does her homework, I let her. You get the picture. This is not at all how I imagined homework time would be in my house because I always thought that “What Mommy says, goes!” However, after letting go of my power trip and giving her more freedom, homework is now much more enjoyable for her. This has made me more easy going in other aspects of my life as well. If things in my life don’t go as planned, I don’t stress about it like I used to. If I accidentally burn dinner for example, I order a pizza. No biggie. Life is too short to sweat the small stuff. And let’s face it, pizza is the best.

Having a child with ADHD has made me more optimistic. Before my child’s ADHD diagnosis, she was in a very dark place. At only 5 years old, she experienced depression and anxiety, which commonly coexist with ADHD. She constantly said  she wished she was never born and that I deserved a better daughter. When she said those awful words, I felt a pain in my heart like nothing I had ever felt before. She had extremely low self-esteem and would put herself down every chance she got. By educating myself more about ADHD and showing my child compassion, patience, and kindness, as well as getting her the help she needed with medication, behavioral therapy, and the unconditional love and support of her family, she was able to come out of the shadows and see the light in her that I have always known was there. She is now doing very well at school and breezes through her homework most days. She is showing the world she is a superstar in her school plays and has the voice of an angel in our church’s children’s choir. Words can’t express how incredibly proud I am to be her mother and to see how far she has come. As cheesy as it sounds, I know she can accomplish anything she puts her mind to. No matter what, she will rise to the top, and I will always be her biggest fan, cheerleader, supporter, and advocate.

As her mother, I work hard every day to make sure I am doing all I can to provide her with a good life. I make sure she is equipped with all of the right tools to help her succeed and use her ADHD to her advantage. All I really want and what I think all parents want is for their children is to have good morals and values. I have been so busy trying to teach my child to be a good person, I never thought in my 30s, my child would in fact be teaching me how to better myself and turn me into a better person. The world has my daughter and her ADHD to thank for that.

We want to hear your story. Become a Mighty contributor here.

Thinkstock photo by vgenyatamanenko

95
95
TOPICS
, Contributor list
JOIN THE CONVERSATION

What 'Relaxation' May Mean When You Have ADHD

105
105

“Just relax.”  I hate when someone says that to me. My brain does not “just relax.” It is impossible. Even when I am asleep, my mind races. My dreams are so out there… so much so that they don’t make any logical sense to me at times.

Most people who are neurotypical do not understand what it is like to live with a non-neurotypical brain. It is something they cannot possible understand, and I don’t fault them for that. But at least listen to me when I tell you it is not at all possible for me to relax. I do not feel calm if I just sit quietly and stare at a TV for hours. I do not enjoy sitting at the beach. I can’t do things “normal” people do to relax. My brain has too much going on for that. I like talking while hiking, coloring while listening to music, doing puzzles, creating something new, painting, building, exploring. I need some stimulation… that, for me, is euphoric. Being able to do something I enjoy, especially if someone I love enjoys it with me, is my type of relaxation.

My current work in progress coloring pencil illustration
My current work in progress

If I were to define “relaxation,” it would not be the same relaxed feeling others may feel — like a weight is lifted off their shoulder and they are comfortable and can release the tension felt throughout their day. I define relaxation as a time when I can not be overwhelmed by the world around me, where my thoughts are not racing, where I am able to enjoy something and don’t have to conform to the norms of society to fit in. Relaxation is feeling myself, doing something that makes me truly happy and comfortable. I don’t find comfort in a bed or comfy chair. I find comfort in activities or situations where my thoughts aren’t racing. I love letting my imagination go wild, allowing myself to create things without any worry about negative influence. That for me is the feeling I love.

We want to hear your story. Become a Mighty contributor here.

105
105
TOPICS
JOIN THE CONVERSATION

Real People. Real Stories.

7,000
CONTRIBUTORS
150 Million
READERS

We face disability, disease and mental illness together.