Why I Walk for Lupus Awareness


It’s May and that means we’re gearing up for another Lupus Walk. This is the seventh year we walk, the seventh year we gather in our matching team shirts, huddled together, united not by class or politics, tax bracket or neighborhood. We walk side by side, young and old, light and dark, rich and poor to fight a disease that does not discriminate. Neither rain nor unpleasant weather will stop us in our quest to find a cure for this deadly disease. Too many of my incredible “lupie” sisters and brothers need it. I need it.

woman wearing a lupus awareness tshirt and standing in a baseball stadium

I must give a shout-out to my unbelievable lupus warrior support system. We may be spread all over the world geographically but we are forever connected in the heart. Today I walk for all of us, especially all of our fallen warriors, friends we’ve lost along the way. Friends for whom the cure didn’t come soon enough – too many friends, with the numbers growing every year. Rachel, beloved mother of two who lay down for a nap and never again awoke. We mourn you, sister, as we mourn Kristin, so funny and fierce a fighter who never gave up and was always there to provide guidance for everyone, even as she faced her toughest battles. We mourn the sisters and brothers we see memorials posted for on social media, as when one “lupie” dies we are all impacted.

Today I walk for all of my sisters and brothers fighting from a hospital bed. I walk for my friends who are moms and dads and live with the fear every day of passing this on to their children, or leaving them without a parent. I walk for my friends for whom lupus has robbed them of the ability to become a parent. I walk for my friends who struggle to still balance work and lupus with colleagues and bosses who just don’t understand and face prejudices most don’t realize they are projecting. I walk for my friends who can no longer work because lupus has robbed them of careers in the primes of their lives because that balance tipped too far. I walk for the one to be diagnosed tomorrow and the one still reeling in shock from her diagnosis yesterday. I walk for me. Because I may have lupus but it doesn’t have me.

We want to hear your story. Become a Mighty contributor here.

TOPICS
JOIN THE CONVERSATION

Related to Lupus

child holding balloons standing in front of fantasy storm,illustration painting

4 Strategies I Use to Process People's Comments About My Health

“But you look so well.” The above phrase is one that, like many with long-term health conditions, I would love to be banned. When I first got ill and really didn’t have any understanding of my condition or how to handle it, this phrase would make me feel like crying or shouting. I’d feel a [...]
flower red on table ancient at The background is the old wall

Treasured Family Moments Stolen by Lupus

Tonight my daughter, Lizzy, is singing with her chorus at the national anthem at our local Minor League affiliate. Instead of cheering her on with the throng of other parents armed with cellphone cameras and school spirit shirts, I’ll be home, in bed. Yet again, Lupus has reared its ugly head and intruded on another fun [...]
African American woman standing in front of a wooden panel wall, arms crossed.

4 Reactions You Receive When You 'Reveal' Your Illness

Since the 10th of May is the World Lupus Day, I felt the importance of talking about it. It has officially been a year since I was diagnosed with systemic lupus nephritis. It took a year to be diagnosed properly and it was a painful and bumpy road. Before the diagnosis, I was hospitalized for almost a [...]
woman sitting on a hill overlooking a city during sunset

With Chronic Illness, My Life Is Not as Easy as It May Seem

“Your life is so easy. You’re in your 20s with no responsibilities, no kids to tie you down. You have no idea how good you have it.” Ever heard those words or is it just me? My guess… It’s not just me. And every time I smile and laugh, hiding the pain away again. But what [...]