Painting of a double exposure with a woman and a floral layer.

Why I Started to Live Outside Life's 'Safe Zone' Because of Lupus


Before I was diagnosed with lupus I always played life in the safe zone. It didn’t really change much after I was diagnosed – until I had a flare that I thought was going to be the end of me. I swore to myself that if I recovered I was going to make the most out of my life and squeeze every bit of enjoyment out of my good days when I had them….And boy, have I ever stayed true to that.

From entering a competition and winning a holiday to Tasmania to picking up a hitchhiker while we were there. Something I had always been tempted to do, but never brave enough to do just in case they were a crazed axe-murderer.  He was a lovely Vietnamese gentleman who was hitchhiking and backpacking his way around Australia.) I even booked a spur of the moment overseas holiday.

My poor husband was always suggesting things like that. I was always saying no, just in case an unexpected bill came up or something happened. We’d better save the money. Always sticking to the safe zone. After that flare, he’s learnt if he suggests something now he better mean it. He suggested the trip to Thailand on a whim and I had flights and accommodation booked within an hour. To say he was surprised is an understatement!

I like to think it’s all thanks to lupus. If I didn’t have lupus, if I hadn’t had such a big scare, I’d still be living my life in the safe zone. And missing out on so much.

I was also hesitant to speak up for myself and worried about what people thought. Nowadays I have learnt to say no and not worry if someone has a problem with it. I’ve accepted I can no longer push myself the way I used to. If that upsets someone that’s their problem to deal with, not mine. I have put my family and I first and am doing everything to chase my dreams on the good days and doing everything I can to survive and minimize the bad days.

I have to put my family and I first and am doing everything to chase my dreams on the good days and doing everything I can to survive and minimize the bad days.

So I like to find the positives in my illness and I thank lupus for the joy it has given me.

We want to hear your story. Become a Mighty contributor here.

Thinkstock Image By: Grandfailure

TOPICS
JOIN THE CONVERSATION

Related to Lupus

woman and her dog sitting on a pier watching the sunrise

How My Support Dog Helps Me Through Life With Chronic Pain

About two and a half years ago, my husband and I went to the local shelter “just to see” the dogs. (I really should know better. I’m the type of person who would take all of the dogs home if I could.) During this time, I had really been struggling with health issues. My depression had hit [...]
woman frosting a batch of cupcakes

How Baking Helps Me Cope With Lupus

I frequently step into my kitchen to bake. Before I gather my ingredients, I think my way through the creation process and put together the finished product in my mind. The excitement, the anticipation! As I begin my recipes I always have the recipe written down in front of my work space. No matter how [...]
photo of nicole mills

My Battle Towards Remission From Lupus

I have debated sharing my story publicly. I wondered how the message would be received, but then I realized a lot of people with lupus struggle like I do explaining the gravity of what we go through on a daily basis. That is what most people forget. That this is a daily battle. It doesn’t [...]

Getting Home Before Midnight: Self-Care Planning With Chronic Illness

June 7, 6:55 p.m. I’m standing proud and tall dressed in my new “official school chorus” shirt, generously provided by the parent of one of my students. As I raise my iPhone to my ear to hear the starting pitch (yes, there really is an app for everything), I take a calming breath, ignore the [...]