Just Ask About My Son With Down Syndrome


There have been many times since I became a Mama in the T21 club that I have wished, hoped and yearned that more people had the instinct to ask me about my son.

My son, Benny, has Down syndrome.

That is a fact, and a fact I am more than comfortable with. It is a fact I embrace whole-heartedly. What I am not comfortable with are the times I am often faced with when people stare at us and whisper. I do not embrace the moments when people casually use the word “r*t*rd*d” or “slow” around me and fail to understand the power those words have.

 

Recently, a fellow Mama in the Detroit area did what I wish everyone would do: she asked the questions.

Chel Bell Guild invited me to her web series titled #FromHereToThere and asked me to educate her, to allow her a moment to clear up how her words matter. This, my friends, is more than anyone can ask for. As a mama to a baby boy with Down syndrome, I don’t expect you to know or understand our world as well as I do, but I would love for you to ask the question.

Just Ask.

Follow this journey on Ben Through It All.

We want to hear your story. Become a Mighty contributor here.

TOPICS
,
JOIN THE CONVERSATION

Related to Down Syndrome

What Charlottesville and Iceland Have in Common, From a Mother of a Child With Down Syndrome

The Down syndrome community is outraged. The anger stems from two separate reports: one about prenatal testing and the growing termination rate of babies with Down syndrome in Australia and the other about how Iceland is nearly eradicating people with Down syndrome from their country through abortion. As our small group is dealing with this hurt, most Americans are [...]

My Sister With Down Syndrome Increased My Family's Capacity to Love

When I was in third grade, my teacher assigned a heritage project in which we researched our ancestry, wrote a paper on our findings and brought some kind of cultural dish to share with the class. As a 9-year-old I was intrigued to learn Iceland was not a country made entirely of ice, but was [...]
Baby with down syndrome with ntube and sleeping on dad's arms.

What I Learned About Myself After My Son's Down Syndrome Diagnosis

When I was in high school I wrote a report on “Down’s syndrome.” Admittedly, I did poor research for that paper. The very title showed my ignorance of the subject as I didn’t realize there is no apostrophe, “Down’s” is incorrect terminology “Down syndrome” is the preferred language. I recall little about the report’s contents, [...]
couple at hospital, mom in bed holding baby born with Down syndrome

I Never Considered Ending My Pregnancy Because of Down Syndrome

Over the past few days there have been numerous news stories and blog posts regarding Iceland and their termination rate of Down syndrome. I felt compelled to share my story as well since I am the proud mother to an 11-year-old son who has an extra chromosome. It makes me sick knowing an entire country is trying [...]