Dear Young Mom Facing A Down Syndrome Diagnosis

I know what it feels like to feel unequipped. I am 23 years old and I have two kids two and under, one with Down Syndrome. Sometimes I feel like I am a toddler in an adult body, stumbling around, asking if I’m doing this or that OK and crying when I’m too tired. I am an adult, but I feel so small.

I know what it feels like to be handed a baby who has a condition I knew nothing about. I looked at Arbor’s Down syndrome diagnosis with a positive attitude, but it is hard to be confident about something you don’t know. I get it. I would be lying if I said I never thought someone else would be better at raising my kids than me. However, I am meant to be the mother of my children. I am young, but I am a mother. I believe God placed children who were meant to be mine into my arms.

Young mom like me, you are equipped for this big job of being the mom to a child with Down syndrome. Do not let your age determine your capability. If you feel like you do not know enough, ask questions or read all you can about it. Maybe your wisdom is not as vast as your own mother’s wisdom, but you will get there. If you love your baby, you are already an amazing mom. Loving your baby will cause you to advocate, learn and grow in ways you could never have imagined the moment you first heard the words, “Your baby has Down syndrome.”

You were called for this. You were born for this. Take on your special mission with joy. Trust me, the joy ahead is so worth it.

We want to hear your story. Become a Mighty contributor here.


Find this story helpful? Share it with someone you care about.

Related to Down Syndrome

What I Should Have Asked When My Son Was Born With Down Syndrome

We had a lot of questions when our son was born with Down syndrome. Troy on the right, with his typical twin and Trenton, my husband Why was this happening to us? What health problems will Troy have? Would he be high functioning? Will Troy ever play with his typical twin brother? Would we ever [...]
Little girl with Down syndrome

Down Syndrome Is Always on My Mind

I read on a blog a while ago where a writer mom said she “forgot” her son had Down syndrome. I can’t say that has ever happened to me. Even for a short trip to the beach, I’m reminded of the extra help and supervision my child will need. That extra chromosome plays a part [...]

Dear Me, Congratulations on the Birth of Your Son With Down Syndrome!

Dear Me, Congratulations on your new son! I know, I know, it doesn’t feel like quite the right sentiment, but it is. Accept that word. It is right. Not all will say it, but the best doctors nurses, friends and family will. It may land a little funny, like a home run that bounces over [...]

5 Ways My Boy With Down Syndrome Shines

When you have a kid with Down syndrome, you hear a lot about what they can’t do. How they don’t measure up to neurotypical peers in reading or math or handwriting or jumping jacks. Those gaps are analyzed and quantified and presented in brutally clinical fashion in IEP meetings. But too little time is spent [...]