When I Attended the NDSS Leadership Summit to End 'Law Syndrome'


As you all know October is Down Syndrome Awareness Month, and what a month it was. From celebrating amazing individuals like my son, who are rocking an extra 21st chromosome, to advocating for their rights with the National Down Syndrome Society at the first Leadership Summit. There were over 150 self-advocates like David DeSanctis, actor from “Where Hope Grows,” to Collette DiVitto from the famous Boston cookie company, parents and many more.

During the first three days of October, I was invited along with self-advocates, ambassadors and leaders all over the country to spread awareness and announce the new legislative campaign aimed at breaking down barriers to employment for all individuals with Down syndrome, called “Law Syndrome.”

As we traveled to our nation’s capital, we had a full schedule of learning about leadership in Gettysburg, tour the Capital building and then meeting our state and congressional representatives to share with them the laws we would like them to support.It was a whirlwind few days and I have to say I was exhausted, but it was an amazing experience doing what I love: advocating.

I met so many new friends and learned so much, I hope to do it again.

This post was written by Marla Murasko. It is published by the National Down Syndrome Society.

We want to hear your story. Become a Mighty contributor here.

TOPICS
,
JOIN THE CONVERSATION

Related to Down Syndrome

Man With Down Syndrome, Christian Bowers, Named 'Honorary Deputy' in Missouri

On Thursday, Christian Bowers, a 19-year-old with Down syndrome, was sworn in as “Honorary Deputy” for the Miller County Sheriff’s Department in Missouri. A friend of the family — who wishes to remain anonymous — emailed the Miller County Sheriff’s Department letting them know it was Bowers’ lifelong dream to be a police officer. The [...]
Black and white image of couple holding a baby with Down syndrome

Expecting My Second Child With Down Syndrome

I hate the phrase: “special kids are only given to special parents.” I know it is said by some of the sweetest, most well-meaning people with hearts of gold. They probably could never imagine the way it makes me cringe; the tiny letdown I feel every time I hear it. You see, I’m not special. [...]
Brother and sister hugging. Boy has Down syndrome.

Don't Be Sorry My Child Has Down Syndrome

When you see my son or it comes up in conversation that he has Down syndrome, please don’t apologize. I’m not sorry. I think he’s perfect just as he is and if he were meant to be any other way he would be. If you feel the need to be sorry about something, be sorry [...]

How I Responded When a Doctor Called My Daughter With Down Syndrome 'High Functioning'

Recently, we’ve had to take our youngest daughter — who is 9 years old — to a bunch of specialists as we try to figure out why she has lost her appetite and is losing weight. You can imagine how scary it can be as a parent when you see your child turn into skin and [...]