What Helps Me Stay Organized as a Mom of a Child With a Disability

It’s not easy raising a child. Double that when you have two. Triple that when you have three, and so on. When you have a child with a disability to care for along with your other children, the difficulty is increased. Yes, it can be tough sometimes!

But when I see other moms doing it, I’m inspired. I’ve seen moms caring for more than one child with a disability. To me, they are super moms. I can only imagine how hectic their daily schedule can be. I have one child with a disability and I get overwhelmed at times.

One thing I’ve learned from these moms and from my own experience is the importance of being organized. The calendar is my best friend. Whether it be a printed one or an app in an electronic device, I have to have a calendar in which to put all appointments.

I use the calendar app in my phone, which I synchronize to my other devices such as my laptop and iPad. After entering information in my calendar, I write all appointments for the month on our family’s white board in the kitchen. Writing them on the board gives me a quick look at those appointments for the month. Once we’ve gone to one appointment, I erase it from the board.

Aside from being organized with the schedule of appointments, it is important to keep a record of all important telephone numbers. For me, I have the numbers for all of Miguel’s doctors, nurse assistants and therapists. I keep these numbers on my phone contact list as well as on the file folder I’m keeping for Miguel.

Speaking of file folders, I began compiling all of Miguel’s tests and doctor’s reports when we started this journey with his microcephaly. I bring it with me every time we have a doctor’s appointment so I won’t have to explain his medical issues over and over again. And I find that his doctors appreciate I have this file.

In Miguel’s room, I have a board where I pin all necessary forms such as his feeding journal, record of seizures and medicine schedule. It’s very helpful, especially when I am monitoring his feeding and when he has seizures.

It has helped us, especially during those times when we needed to call the paramedics. There was one time when Miguel was having seizures and in respiratory distress, the paramedics simply looked at the board and they got all information they needed, like what type of seizures he had and what medicines I gave. They didn’t have to ask me a lot of questions. That surely saved us precious time!

I can say it’s all worth the effort.

Follow this journey at Miguel’s Life With Microcephaly.

We want to hear your story. Become a Mighty contributor here.

Getty image by Image Source

Find this story helpful? Share it with someone you care about.

Related to Microcephaly

How I Explained to My Toddler Her Brother Has a Disability

I was lying down in bed with my 3-year-old daughter, Olivia. We were playing with Miguel when she asked me, “Mommy, is he a doll?” I was surprised. I asked her why she thought that about her brother and she said, “Because he doesn’t walk. He doesn’t talk. So, he is a doll.” Honestly, I [...]

As a Parent of a Child With a Disability, Sometimes I Feel Defeated

For us, parents of children with disabilities, defeat is one word we would never want to hear. This is because defeat is a negative word. It is the very opposite of victory. So, why would anyone want to accept defeat? In caring for our beloved child, we have victories and we celebrate those endlessly. But, [...]
Young woman standing by the river. Blurred background.

When Strangers Point Out My 'Small Head'

I am a mentally and physically disabled person. I do not like when people call people with disabilities “retards.” I don’t like that word because we are smart. The other thing I really do not like is when people stare at people like me with microcephaly — meaning someone is born with a small head. [...]
Family hands

What Parents of Children With Microcephaly Want You to Know

I think everyone has heard about the Zika virus by now. According to the World Health Organization, there is “scientific consensus that Zika virus is a cause of microcephaly.” There are even commercials on the radio for a product to “protect you and your baby” from the Zika virus. Below is a comment someone posted in a [...]