My Child's Heart Condition Changed Me as a Mother


I remember attending the 20-week scan for my pregnancy. My husband and I were naive and unprepared. We knew this anomaly scan would show potential medical concerns, but we never thought it would happen to us.

Looking at the grainy black and white image on the screen, I could see a little heart beating away. But even to me, untrained, first pregnancy, I could see that little heart didn’t look “right.”

The next 18 weeks were spent attending weekly appointments and in total I had 32 scans. Each week it seemed to be something new: heart too small, multiple holes, pulmonary stenosis.

Having a baby with a serious medical condition changes you. It changes your relationships and outlook on life. I’ve been very lucky that my husband and I have worked as a strong team through the tough times. I truly could not have done this without him by my side.

I wouldn’t change a thing about my gorgeous little girl and I feel truly blessed she has come into my life and made me a stronger, more capable mother.

We want to hear your story. Become a Mighty contributor here.

Getty image by Halfpoint


Find this story helpful? Share it with someone you care about.


Related to Congenital Heart Defect/Disease

A mother and daughter smiling.

How I Helped My Daughter With CHD Take Control of Her Healthcare

Watching your child leave home for the first time can be worrisome, especially with cardiac issues to consider. Janice shares how she has helped prepare Abby to take greater ownership of her own care.  Our cardiac story began about 16 years ago when my daughter was 2. At one of her pediatrician’s visits, the doctor [...]
Little boy playing in snow

3 Things That Helped My Mental Health While Caring for My Child With CHD

Has congenital heart defect (CHD) affected my mental health? Absolutely. Finding out about your child’s congenital heart defect on the third day of his life and knowing he would have to undergo open-heart surgery by 6 months of age does a number to one’s psyche. Being a first time parent, you have this idea in [...]
A young woman sitting in a library, reading a book.

What It's Like Going to College With a Pacemaker

Going off to college is a major milestone in a young adult’s life. For many, it is the first time living away from home, from their parents, and from everything familiar to them. A chronic illness can complicate the transition. Abby shares what it was like for her to gain her independence while managing atrioventricular block.  [...]
The three children and the team that created their heart valves behind them, making hearts with their hands.

When My Family Met the Team That Created My Son's Heart Valve

Recently, my family and two dear heart families were able to visit Edwards Lifesciences where each of our tetralogy of fallot (TOF) warrior’s heart valves were made. We were able to tour the facility, learn about the history of heart valves, and lastly, but most importantly, we were able to meet the team that sewed together [...]