What Google Couldn't Tell Me About My Son's Condition


When I found out my son was going to have a cleft lip and palate and a rare chromosome disorder, I did exactly what the doctors told me not to do: I Googled. I Googled everything, every day. It consumed the last four months of my pregnancy, terrified me to give birth to my son, and took away every ounce of hope I had left.

Google told me I would not be able to breastfeed my baby, that he may never walk and that his developmental delay would be severe. While Google told me all of the things my son wouldn’t be able to do, Google didn’t tell me what my son would be able to do.

Google didn’t tell me my son would have the ability to steal the hearts of everybody he met. Google didn’t tell me I would be so in love with his beautiful wide smile or that complete strangers would, too. Google told me people would stare and make rude comments. Google didn’t tell me strangers would go out of their way to tell me that my son is beautiful.

Google told me that my son might not meet certain milestones. Google told me every child is different and would meet their milestones at their own speed. Google didn’t tell me how much joy we would feel when he hit these milestones. Google didn’t tell me how proud I would be to be my son’s mother.

Google told me this first year was going to be hard. Google told me that my baby would go under surgery multiple times this year to correct his “imperfect” face. Google didn’t tell me I would wish for more time with my son’s cleft lip. Google didn’t tell me I would mourn the loss of his first smile.

Google told me a cleft lip and palate was a common birth defect. Google told me I would find support through other parents going through this. Google didn’t tell me that my fellow cleft mom’s would end up being some of my most cherished friends.

Google cannot define my son’s diagnoses, only he can. He will show us what he is capable of and overcome obstacles at his speed, and I think that is something truly special.

Follow this journey at www.cleftconnection.com.

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