Finding Balance as a Writer With Cerebral Palsy
I am a writer. I spend my days playing with words, spilling my thoughts and pouring out my heart in the hope that someone, even if it is only myself, will learn from my mistakes.
I am a woman with cerebral palsy. I spend my days relentlessly analyzing my gait, adapting to the world around me and longing for acceptance from society in the hope that someday, I will reach complete self-love.
I am a writer with cerebral palsy.
I constantly find myself at the jutting edge of a precipice, dangerously close to a free-fall. I strive to be seen as a typical woman, but I feel an overpowering responsibility to advocate for the disability community, using my writing to foster hope and belonging.
I am invariably tugged in opposite directions, torn between two worlds. In one world, I maintain a veneer of privacy. I am never asked invasive questions by strangers on the street, nor am I denied opportunities as a consequence of my life circumstances. In another world, another life, my privacy is shattered by my vulnerability, by my insistence on authenticity. I am a woman weathered by the harshness of life, a woman well accustomed to overcoming, a woman who needs the world to see the truth behind her facade of typicality.
Sometimes I teeter on the precipice feeling stark naked, worrying I’ve shown the world too much, fearing that my disability consumes my identity. I suddenly realize cerebral palsy is all I know, obscuring the outside world. It becomes all I can see, but is it all anyone can see? Does the world see a woman intent on broadcasting her lilting gait, her struggles and her life story for the sake of a shred of unsolicited awareness? Or does the world see a well-rounded, stable woman with an unquellable lust for life, a burning passion for writing and a slight touch of cerebral palsy?
Then without warning, my balance shifts. As I send ink cascading across a blank page, breathing life into loss and love and life itself, I agonize over whether or not I am doing enough for the community that has accepted me, encouraged me, shaped me. I am struck by my relative privilege, my verbosity, my mobility, my intelligence, and the prospect of choosing to downplay my life story, my disability, fills me with guilt. How can I write, advocate, and still be myself? How can I help others to the best of my ability while still retaining a semblance of normalcy?
I breathe a sigh of relief knowing that I remain on solid ground. I am currently clinging to two conflicting worlds with every fiber of my being, and although I am dangerously close to careening off the precipice, for now I remain stable.
I am a writer with cerebral palsy, and one day I will find balance. For now, I’m successfully scaling a steep precipice, one word and one step at a time.
Previously published on Project Wednesday.
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