When My Son With Autism and I Found Our Tribe


Shortly after my son was diagnosed with autism, he started occupational therapy (OT). For as long as I live, I will never forget walking into his first appointment and feeling such relief as I observed the other kids there. As one boy came careening around the wall and then crashed into it, I realized I had found my son’s tribe. There were other kids out there just like him! He wasn’t alone!

Not only did he find his tribe, but I found mine in the other parents in the waiting rooms who were all going through similar experiences. This brought me hope and the information I was searching for.

Finding your tribe is probably one of the most important things you can do for yourself and your child after receiving a diagnosis that knocks you off your feet. They help you regain your balance, feel accepted and not out of control, (because sometimes you really wonder about how to keep it together). It helps your child deal with the loneliness that comes with discovering you are different — friends who don’t have medical procedures they have to do every day, or jokes that you don’t understand because to you, speech is very literal, or friends who are playing after school when instead you’re at doctors appointments, therapy or just too exhausted to play.

To my tribe, thank you!

To those of you who aren’t in my tribe yet, I can’t wait to meet you and help you in the way so many others have helped us.

We want to hear your story. Become a Mighty contributor here.

Getty image by Rawpixel


Find this story helpful? Share it with someone you care about.


Related to Autism Spectrum Disorder

Elopement and Autism

Wondering what “elopement” and autism have in common? Do individuals with autism often secretly run away to get married? Alas, that is not the case. The original definition of elope is to run away and not return to the place of origin. However, as defined by the National Institute of Elopement Prevention and Resolution (NIEPR), [...]

How I Develop My Children's Sense of Interoception

One of the things I have learnt on our autism journey thus far is that you never stop learning. Never! Since O started her therapy sessions, we have begun yet another learning journey. Ever since O started Kindy, we have always struggled to get her to drink water regularly. The issue with not drinking enough [...]
Sad man checking mobile phone.

Being Broken Up With Via Text Message as Someone With Autism

In a digital age it seems like more and more individuals in relationships are being broken up with via text message. There are countless websites that talk about when it’s OK to break up with someone via text message, often saying when it’s a relationship that hasn’t lasted long and/or a very negative relationship. The [...]
happy couple making glasses with fingers and showing tongue

Autism and Finding a True Best Friend

Being an adult with autism, I have overcome a lot, but to this day I still struggle with knowing the difference between a good friend and someone who wants to take advantage. However I’ve been lucky to have my best friend, Frank, come into my life, and he has taught me what a good friend [...]