13 of the Funniest (and Most Relatable) Tweets About Ehlers-Danlos Syndrome

Life with Ehlers-Danlos syndrome (EDS) can be frustrating and isolating, especially on days when your pain and symptoms are in full force.

• What is Ehlers-Danlos Syndrome?
• What Are Common Ehlers-Danlos Syndrome Symptoms?

EDS is a genetic condition that affects collagen, a connective tissue that is found everywhere in your body from your joints to your ligaments and tendons, skin and organ tissues. The most common EDS symptoms include overly flexible joints, stretchy or loose skin and easy bruising.

Whether you’re struggling with physical symptoms or the toll EDS can take on your mental health, lifestyle or relationships, it can be enormously helpful to connect and laugh with fellow EDS zebras.

To add a little humor to your day, we rounded up some of the funniest and most relatable tweets about EDS. Not only do these tweets nail what life is like with the condition, but they’re a great reminder you’re not alone, and other people can understand just what you’re going through.

Check out the 16 tweets below, and let us know which one is your favorite in the comments!

1.

I woke up and did my usual post-sleep joint pops and cracks to get everything in place. It’s not quiet.

Forgot that I hadn’t told my conference roommate about my #EhlersDanlosSyndrome.

[gif shows a puppet monkey looking shocked and a little scared] pic.twitter.com/ls8MiO4RuO

— Gabi Serrato Marks, PhD (@gserratomarks) July 11, 2019

2.

I can guess why ….. 😉 #humor #Medicalzebra #EhlersDanlosSyndrome #genetics #mhealth pic.twitter.com/hHSsrurwRU

— EDSWellness (@EDSWellnessSol) November 20, 2015

3.

Me: I'm falling apart
Person: Aww wanna talk about it?
Me: No literally my ligaments are all torn and not working#onlyEDS #EDSprobs

— EhlersDanlos Support (@Ehlers__Danlos) July 8, 2016

4.

I feel like my life is a constant montage of that guy on SpongeBob yelling “My leg!” #EhlersDanlosSyndrome

— chronically chILL ????????️‍???????? (@zwickster22) June 18, 2019

5.

I did the smallest laugh and my shoulder blade subluxed… EDS got be living like rasputin in anastasia…#ehlersdanlossyndrome #chronicillness #chronicpain #invisibleillness #sublux #eds pic.twitter.com/vCTLYEvP2y

— Mica_Fifi (@MicaLaurenn) June 22, 2019

6.

It’s the last day of Eds awareness month!!

Lol me trying to explain Eds. #EDS #EhlersDanlosSyndrome #EhlersDanlos #ChronicPain #Disabled #DisabledGamer #Gamer #GamerGirl #SupportSmallStreamers #Fatigue #ChronicIllness pic.twitter.com/gYaWhMfY1D

— Nicki Heiman (@Shukke) May 31, 2019

 

7.

#RareDiseaseDay #EDS #ehlersdanlossyndrome my joints go out more often than I do! #humor pic.twitter.com/Px9clWeBdX

— Dr m/z ( م/ز ) (@Dr_mz13) February 29, 2016

8.

ridiculous ways I have accidentally injured myself this morning
-taking off pants (knee)
-washing my hair (shoulder & rib)
-putting on pants (hip)#hypermobility #HSD #hEDS

— Meep Matsushima (@transpacifique) June 23, 2019

9.

You know you have #EhlersDanlosSyndrome when you dislocate your fingers pulling up your leggings. ????????

— Kirstie Black♿️ (@KittyDotty) July 14, 2019

10.

Just been ID’d @Morrisons Elland because she said, I don’t have any wrinkles! ???? Cashier looked well awkward when she saw I was nearly 37 and I told her it’s because of a genetic condition that affects my collagen. #EhlersDanlosSyndrome #onlywrinkleypeopledrink?

— inky-paper (@PaperInky) July 18, 2019

11.

#EhlersDanlosSyndrome #EDS is the most ironic disorder ever. “I’m going to give you delayed wound healing, frequent dislocations, easy bruising, and atypical scarring…oh yeah, and the joint laxity is going to make you SUPER clumsy so have fun with all those bruises and scars!”

— IsaJennie (@IsaJennie) July 13, 2019

12.

You know you have #EDS when… you stub a toe on your left foot and dislocate your right shoulder… *whistles innocently* #ehlersdanlos #hypermobility

— Tria (@trialia) March 30, 2019

13.

Me: Could the doctor see me today on an emergency basis?
Receptionist: What’s the emergency?
Me: I tried to get up and everything fell apart.#EhlersDanlosSyndrome #ChronicIllness

— Cynthia Wenger (@CynthiaW27) July 20, 2019

Connect with other EDS zebras 24/7 to give and receive support, advice and encouragement. Our community is here for you!