Achondroplasia 101: The Basics
Whether your loved one was just diagnosed or you want to learn more about ACH, we know how dizzying it can be. Here's a good place to start.
All About Achondroplasia Research
Looking for basic clinical information about ACH? From causes to potential health complications & comorbidities, we got you! Right this way.
ACH Patient Advocacy Organizations
We love a good advocacy org! Check out this round-up of nonprofits dedicated to raising awareness of dwarfism, including types like ACH.
For ACH Patients, By ACH Patients
We believe so strongly in centering the patient voice. This collection features first-hand experiences from folks living with ACH.
So You Want to Learn About Dwarfism?
It can be tough to find ACH-specific resources. Here's a few orgs that provide general info about dwarfism, from types to complications.
Parenting Children With Rare Disease
Rare disease families have a unique bond. These stories will lead you through the entire emotional spectrum: from diagnosis to daily life.
Managing Health Care With Rare Disease
What's it like to navigate health care when you're constantly having to educate (and spell) your disease to others? Right this way.
The Reality of Living With Rare Disease
"It's not easy to treat something your physicians don't fully understand." This collection goes out to anyone who just nodded their head.
Rare Disease and Relationships
From friendship to marriage, these stories serve up advice & raw insights into relationships when there's a rare disease in the picture.
Supporting Someone With Rare Disease
It can be hard to know where to start when caring for someone with a rare disease. What do you say? What's actually helpful? We've got you!
Trials and Treatments for Rare Disease
The bitter truth: Rare disease treatments are hard to come by and the demand for clinical trials is high. These stories offer solidarity.
Where Rare Disease & Mental Health Meet
It may feel impossible to accept a diagnosis that most haven't heard of. Note to self: Your mental health is just as important to care for.