FPIES Foundation

When my daughter was 2 years old, she had a scary bout of stomach flu. She finally started eating again and was keeping down fluids and food. So I was shocked when I was carrying her out to my car after a visit to grandma’s, when she had a seizure in my arms. There are [...]

I have Dercum’s disease, an extremely rare condition that is predominantly found in females. I belong to multiple support groups on Facebook, like this one. I have known for a long time that women are treated differently than men are by medical providers, and these differences in treatment (or should I say lack of treatment) are [...]

This post was inspired by a Food Protein-Induced Enterocolitis Syndrome (FPIES) article appearing on The Mighty, “What I’ve learned as a mother of a child with FPIES.” At the end of the article, the author mentions her ability to know the cross-contamination of common grocery store items. When we shared this article with our community, it [...]

This week is Feeding Tube Awareness Week and we wanted to share with you how much having a feeding tube has positively impacted our son’s life. The decision for our son to have a feeding tube has been one of the hardest decisions we had to make for any of our children. I want you [...]

There’s a moment when I hold my son, T, for his blood draws, before the countdown starts. Before the elastic band gets tied above his elbow. Before the nurse tries to make overly lighthearted conversation. There’s just a minute when I allow myself to feel guilty. I know what’s coming, and by now so does [...]

In the rare disease communities, other parents can be a wealth of information and we witness parents paying it forward every day.  The FPIES Foundation was founded with these same pay-it-forward goals in mind, sparked by the desire to help other families find their way. Food protein induced enterocolitis syndrome (FPIES) is a delayed type of [...]

Food-protein induced enterocolitis syndrome (FPIES) is a type of food allergy. FPIES is a delayed food allergy of the gastrointestinal system, which means a reaction may not happen until hours after a trigger food exposure. FPIES is most often diagnosed in infants and young children although school age children and some adults are living with [...]