This month I have been impacted by dental issues. I have heard from other women with #InflammatoryBowelDiseaseIBD that malnutrition, medication side effects, etc. can impact their teeth.
This month on our social media channels, we have been thinking about how to confront some of the hurtful comments that we sometimes hear about #InflammatoryBowelDiseaseIBD For example, questions like "are you really that sick? You don't look sick" or comments about gaining/losing weight. I wanted to continue this conversation in this group.
When I get asked a question that is hurtful or shows a lack of education, I first try to advocate and provide more accurate information. However, if the questions or comments persist, I have to find a way to walk away from the conversation.
Walking away from these conversations can be difficult (even with almost 30 years of having #CrohnsDisease under my belt). One of the ways I have done this is to simply say, "I know we have talked about this before, and I am going to enjoy my time and not discuss it again."
Do you all have any other tips or tricks for how to deal with these types of questions?
Self-care and the holidays!
This time of year is always so hectic I find that self-care can get lost in the shuffle. However, during busier times self-care is critical to decreasing stress and managing life's responsibilities. This weekend I made sure to take time for a bath to recharge after the recent holiday.
How are you all recharging?
Caregiving: is it hard for you to ask for help?
This month is National Family Caregivers Month! Over at Girls With Guts, we are publishing blogs and posting on our social media channels about this topic, which has caused me to reflect on the many ways I receive care as a single woman living alone with #InflammatoryBowelDiseaseIBD .
I am blessed to have a close neighborhood community that has shown up for me recently. For example, I had a port placed and my neighbors took turns bringing me meals after the port was placed as the incisions healed. It took me a long time to learn how to gracefully accept help-- I thought that I had to take care of everything myself.
But, I realized recently that when others in my life are going through things I want to be there for them. So, why would I deny others the ability to be there for me?
In my reflections about receiving help and caregiving, I thought about this Mighty Community and wanted to ask you all about your relationship with the topic of needing care. Is it hard for you to ask for help?
Tips for cold and flu season?
I am getting over a cold this week and have found that being sick with my ostomy has meant that my #Ostomy output has gone up, and my baseline lethargy has increased significantly.
It seems like as I get older with IBD that it takes more for me to recover from these common viruses that we all experience from time to time. So, I spent the past week not doing much and just focusing on resting to get over the cold, but I wonder is there more I could be doing to help my body when I am sick? What tips and tricks do you all have when you have a cold?