WHO WE ARE Lipodystrophy United (LU) is an organization of commited individuals living strong with lipodystrophy. Our mission is to provide an interactive community, facilitating support and education for anyone affected by this rare disease. We serve as a resource and to increase awareness in the general population as well as the medical and insurance communites. We advocate and act as a catalyst for new patient diagnosis by assisting healthcare professionals in the understanding of lipodystrophy trends, physical attributes and clinical symptoms in order to aid in the advancement of knowledge, treatment and future research. WHAT WE DO As a group of volunteers, LU is dedicated to meeting our communities’ needs in the US and globally. We provide an informational website that includes education, patient stories and links to partners and research. We connect patients to each other and to physicians around the world. We provide subtype specific community advisors who assist patients with emotional support and guidance as they navigate difficult issues such as communicating with medical professionals not aware of lipodystrophy (LD) or problems with insurance. LU provides daily updates to the community via social media including new research or community awareness activities. We answer all inquiries that come our way and if we don’t have the answers, we will help you find them. In addition, we actively participate in advocacy training and partner with the greater rare disease community.