Worldwide Syringomyelia & Chiari Task Force Inc.

Here are 15 things people with a diagnosis of syringomyelia want you to know: 1. Syringomyelia (SM) is a disease and it can be complicated. 2. Syringomyelia can cause moderate to severe pain and it has been described this way: “I feel as if someone beat me with a baseball bat from my head down to my [...]

We asked our community to provide feedback to identify some things they do day to day that other people don’t realize is because they have syringomyelia (SM) or Chiari malformation. We received over 80 responses! We would like to highlight some of those responses here so that the public may better understand how syringomyelia and Chiari can affect [...]