Mighty Member since January 2018
When Agnes found out Chiari runs in families and her daughter could possibly have to endure the pain she goes through on a daily basis it was the driving force to start the first Conquer Chiari Walk in her area in Buffalo NY. In 9 years, (she took a few years off) Agnes has raised over $220,000.00 for research, gotten proclamations for NY State to recognize Chiari Awareness Month, had Chiari added to the Days of the Year Online Calendar, got Niagara Falls, the Peace Bridge, and the Electric Tower to illuminate purple in September for Awareness. When Agnes saw people in the email support groups were losing loved ones to Chiari and doctors were not taking the condition seriously she started the original Chiari Angels List in 2008 which has since been taken over with others updating it. Agnes has been on TV, radio, and newspaper media discussing Chiari and has written articles published on the Role of the Dental Hygienist in Treating Patients with Arnold Chiari Malformation. Agnes and her daughter Haley were featured in Neurology Now Magazine and Podcast, now Brain & Spine Magazine etc... More recently Agnes started the Purple Porches for Chiari initiative to help raise more awareness. She also serves on the Board of Directors for The Matthew Row Scholarship Foundation which offers scholarships to students entering college that lost a parent. Agnes holds an Associates Degree in Dental Hygiene and a Bachelors in Business Management.