Mighty Member since April 2017
My name is Ciara, I’m 21, an EDS advocate and I have a passion for helping others. I have Ehlers Danlos Syndrome HM Classic. Also a large number of co morbid conditions such as POTS, CRPS, MCAS, Degenerative Nerves, CFS and Von Willebrand Factor 1 just to name a few. I struggle with everyday life. My conditions don’t make it easy but I like to think they have also made me see the world in a different way. If you’d like to ask any questions please feel free to DM me on Instagram or leave a comment.
to help people understand what it’s like to live with EDS and raise awareness for it ❤️