Mighty Member since June 2015
My husband and I have four children. We have numerous daily challenges. Our youngest son suffers from epilepsy (including Infantile Spasms) and developmental delays because he is severely effected by a genetic disorder called Tuberous Sclerosis Complex. Seven years after our son’s diagnosis, I was diagnosed with Rheumatoid Arthritis and Fibromyalgia. I write because I don’t want anyone to feel as alone as my husband and I did the day we learned our son had a life altering disease, or as alone as we often feel struggling with multiple diagnoses within our home. It is difficult for me to share my life with others, but my hope in doing so is to reach someone across the digital divide and say, “You are not alone.” Our challenges can certainly tear us down, and at times they have, but we hope the lessons of which can better our lives. I can only hope to help others by sharing our experiences.