Mighty Member since February 2017
Gunnar is a successful 27-year-old young man living with cystic fibrosis, the most common fatal genetic illness. After graduating from Boston College in 2013, he now serves as a director of patient outreach, patient advocate and board member at the Boomer Esiason Foundation, the non-profit organization his parents started upon learning of his cystic fibrosis diagnosis. Gunnar is also a co-host of Breathe In: A Cystic Fibrosis Podcast, a writer and the head coach of his high school alma mater’s varsity ice hockey team. Above all else, Gunnar believes it’s important for people living with chronic illness to feel empowered to advocate for themselves as equal individuals. He travels nationwide giving lectures and talks at children’s hospitals and biomedical conferences, and consults with leaders in the rare disease community. He lives in Long Island, New York. Learn more about cystic fibrosis, the Boomer Esiason Foundation and join the cause at www.Esiason.org Learn more about Gunnar at his website: www.GunnarEsiason.com