Cavernomas

Well, the best news of all – I made it, and I am still here. It was never doubted by my skillful neuro team that I wouldn’t make it. Call me a cynic, but it is one of the scariest things I’ve ever done, this brain surgery. Twice. Waking up was always the first question. And second, how would I be [...]

I can’t sleep. It has been a rough day. I feel like I have been drowning, gasping for air – just so many tears. A river of sadness, and fear. This brain surgery project is proving to be much harder the second time around. I’ve been thinking about this a lot, which I’m now realizing is part of [...]

My friend and I were joking yesterday about tattoos. For some reason, it felt really important to get a tattoo before my last brain surgery. Something I could physically see or hold onto — something with predictability or permanence in a life that felt too unpredictable and chaotic and disordered. (I should mention I have [...]