One of the EDS group Victims asked this question, and my mind ran with it.!

Hope there are some things here that might help you, too.
For Children and Family:.
- Make a list of chores you need help with, and let them choose which ones they want to be responsible for. (trade if needed)
The list could have things like:
-Start the Laundry,
Put clothes in dryer
-Fold the clothes
-bring you the mail and papers
-put the sorted mail away for you, (make folders for bills)
-Bring you some tea, Run you a bath
-pick out a movie or story to share
-be responsible for feeding, and playing, and cleaning up after pets. (And themselves). Like doing the Cat box, (w/mask), and sweeping up spilled litter, picking up dog mess, into bags, cleaning pet dishes, feeding, playing, etc.
(My kids had some really great bonding when they took our dog for a walk!)
-fix simple, healthy snacks or meals for themselves, and for you
-put on play acts or toy shows to lift your spirits
-bring you a garden flower in a cup
-(send them on scavenger Hunts that you plan. Hide the secrets when you feel good.)
-have them clean special or seasonal things, like stair rails, baseboards, cabinets, the porch, sweeping, lint roller for pet hair, vacuum for older kids
- sweeping the garage
-help you change your sheets, and towels, clean sinks and tub/shower, (I do my own toilet!)
Encourage them!
-make nice, not cut-throat contests for them, out of cleaning their rooms, have them send you photos of their work
(Make up a reward structure, like stickers, tokens, future activities)
-washing windows, cleaning the bathroom, dusting
- have them show you their schoolwork, reading, art, or interests, even if you're in bed.
(pick a time for each kid, to give them 1 on 1)
-have them help you clean your room! they can dust, clean, sort laundry, hang or fold clothes
-have them color a picture, or write a story, for you.
-Explain to them, that may look healthy on the outside, that your insides are very, very tired. They are your super-Heroes!! Show your love and Gratitude.💜🤗

Adults, Spouse, Friends:
-organize a shift/days or weeks, for some pot luck dinners , that will come from your friends, family, or church. Tell them what the family can eat, and what you, zebra, can't. (Many times you can take the ingredients from a casserole, minus the sauce, cheese, etc. and put in a separate container for you!)

(Could be once a month, or during treatments, operations, much needed breaks)
-Ask them to watch a movie, have some tea and yummy stuff, (or nachos and margherita's, lol)
-#do a craft together
-*Go with you to a Drs appointment*.
-Help you get more organized
-shop online together
-enjoy scented candles or oils
-smoke one(lol)

Well, you get the idea!! I'm not getting any of this, so I made a list of things I# miss.
...Others, feel free to add on! # #FamilyHelpMeEDS