What It's Like to Parent a 'One in a Billion' Child
My daughter Olivia is 5 years old and has a life-limiting condition. It is an extremely rare form of dwarfism, called Goldblatt syndrome. Olivia is the 18th child diagnosed with this condition worldwide. Olivia’s symptoms include extreme short stature, joint laxity, scoliosis, flattened vertebrae, hypermobility, neck instability, low muscle tone, narrow chest cavity, and weak [...]