Hyper IGE Syndrome

I arrived at the airport with a bag full of medications, liquids, and needles. I was making my annual trip to Tel Aviv to escape the New York City winter—that part was normal. Being weighed down by so much medical equipment was not. I asked the Delta representative if she wanted to see the doctor’s [...]

One of the most common thoughts people have about those with invisible illnesses is, “But you don’t look sick!” My brand of invisible illness and rare disease – hyper IGE syndrome – is something few people know about and understand. There five things I want others to know about people with invisible illnesses and rare diseases. 1. I might never get [...]

I used to think I was “normal.” When I was young, I thought frequent visits to doctors and hospitals were ordinary and routine. I became ill many times due to lung infections and had to be hospitalized, but eventually I surpassed every episode. While in college, I had high hopes I would be living my [...]

Dear Hyper IgE Syndrome, I remember when we first met. I was a preteen. I didn’t understand what role you were going to play in my life and my future. Were you always going to be around or would you leave me one day? I didn’t know how to handle you sometimes. You’d show up [...]