Melkersson-Rosenthal Syndrome

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Did anyone here in the #MelkerssonRosenthalSyndrome group know that apparently there are only like 435 diagnosed cases of us worldwide?

So where y’all from, what countries? And how were you originally diagnosed? There are only 15 of us in this group , I hope everyone answers, it’d be interesting to know !
#MelkerssonRosenthalSyndrome

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MelkerssonRosenthalSyndrome 4y

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Is this normal for MRS? I’m scared, it is happening more often and for longer periods of time now

#MelkerssonRosenthalSyndrome #AutoimmuneAngioedema

I was tentatively diagnosed with Melkersson-Rosenthal Syndrome back in December because of a swollen upper lip like this with redness above my lips too like this. The middle of my upper lip feels fairly hard too. Like #granulomacheilitis

Is there anything we can do???? Will I just keep getting worse? it’s not an allergy I was tested for everything, and my blood didn’t indicate anything like #Lupus or #RheumatoidArthritis so is this really just a mystery I’ll have to live with? Does it get worse?

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Dawn Stancliff

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Melkersson-Rosenthal Syndrome

When Your Symptoms Don't Fit Under Any Disease

My Mighty journey has been going on for roughly 20 years as a chronic pain patient, but just over three years ago, at 33 years old, my life was changed forever. I woke up one morning and the left side of my face was completely paralyzed, hurt, and it was so swollen, bright red and [...]

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Did anyone here in the #MelkerssonRosenthalSyndrome group know that apparently there are only like 435 diagnosed cases of us worldwide?

Is this normal for MRS? I’m scared, it is happening more often and for longer periods of time now

When Your Symptoms Don't Fit Under Any Disease

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