Microvillus Inclusion Disease

In the rare disease/chronic illness community, one topic that seems to be brought up time and time again is relationships: personal, professional, platonic or romantic. That being said, I don’t want to talk about employers or professors right now. Maybe another day. I think recently I’ve heard the most discussion about dating or romantic relationships, [...]

It happened again — another line infection. As we walked into Avery’s hospital room we watched as our son held down our beautiful and beautifully rare grandson as the phlebotomist tried her hardest to draw blood. Our son, Josh, knew blood was not going to be taken that day or any day. It had to [...]