Nemaline Myopathy

Before motherhood, I used to think of advocacy as big grand movements, loud protests and picket signs in bright colors. My experience so far has taught me that advocacy arrives in many forms. As the mother of a medically fragile child, it can come quietly. In moments where you feel lost in a fog of [...]

Photo above by Living in the Light. Ethan, I still can’t believe that three years ago, I became your mother. I’ve watched you grow from this tiny, beautiful and fragile little baby to this larger-than-life little boy. I remember holding your tiny little body, not even 24 hours old, on my chest and feeling overwhelmed [...]

When I was pregnant, I obsessed over every little thing to prepare for our first baby. I downloaded several pregnancy apps and read the popular pregnancy books. I worried about which parenting methods we would use, what baby products were the best and which sleeping position would be safest for our newborn. I worried about [...]

Today I want to share a side that isn’t easy. I think we spend a lot of time criticizing ourselves and comparing. Facebook makes it easy to show the best and hide the worst. I often kick myself for not doing as much as the next parent, especially in the special needs parenting community. I [...]