Parkes Weber Syndrome

Feed
Join the Conversation on
Parkes Weber Syndrome
33 people
0 stories
2 posts
About Parkes Weber Syndrome
Explore Our Newsletters
What's New in Parkes Weber Syndrome
All
Stories
Posts
Videos
Latest
Trending
Story
A photo of a girl in her bikini with text that says, "I won't let anyone dim my sunshine because they are blinded. I'll tell them to put on some sunglasses cause I was born this way."
A photo of a girl in her bikini with text that says, "I won't let anyone dim my sunshine because they are blinded. I'll tell them to put on some sunglasses cause I was born this way."
Rachel Kassenbrock
 • 
Parkes Weber Syndrome
8y

Teen's Photo Proves She Won't Let Her Rare Disorder Keep Her From Wearing a Bikini

Isa-Bella Leclair knows what it means to feel comfortable in your own skin. Leclair, 19, lives with Parkes Weber syndrome, a rare disorder that causes vascular malfunctions and can lead to abnormal swelling and large pink marks on the skin called “port wine stains.” Because of the disease, Leclair’s right leg has swelled to nearly 40 pounds, according [...]
Share this post Share
See all comments Be first 332
Save