Home #EDS #pulmonaryhyptension #pe
This was the year that I told myself I was going to be home and only go to the hospital if I was forced to. Well that all changed when the first hospital I went failed to diagnose the pulmonary embolisms in both lungs. It damaged my lungs and now I can’t stay out of the hospital. I’m on oxygen full time. Even on it I feel like I cant breathe or like I’m going to pass out. I have a hard time doing anything. I could sleep all night and then take my kids to school and come back and sleep until its time to get ready to pick up the kids. Then sometimes I fall asleep even when I get back from picking them up. I’m just that exhausted. I’m tired of all of it, I want to have t energy to go to lunch with my friends or do things with my family.