STAT 1 Deficiency

Four years ago last November, we began the journey with a bone marrow transplant.  Our son, then six, was diagnosed with a terminal immune deficiency condition known as a stat 1 deficiency that gave him only years left to live. A bone marrow transplant was his only option, but it had never been done before to [...]

Most of my writings have been about the past, but now I want to address the present. Lately I have been having difficulty trying to make sense of the world. It has been three years since our original diagnosis day, and only a few months since we received the news that my son’s doctors think the bone marrow transplant [...]