Heartbroken X2
Thank you for writing this. We have 2 boys with Hunter Syndrome. Would love just once if they had friends or even get invited to a birthday party. As they get older no one wants to be apart of them and it hurts especially being a dad. We try to navigate their lives to make them as normal as the rest of the social circle but when we are excluded from gatherings it just reminds us that we are different. Im sure some of you experience our daily lives. #x2