Finding Your Balance. Managing a career while navigating the unpredictable nature of fibromyalgia is a balancing act that requires a mix of self-advocacy, and radical self-compassion. Remember to take care of yourself! You’re more than a Conqueror
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Take it One Day at A Time
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Experiencing long COVID can be confusing, frustrating, and disorienting—especially since there’s still so much to learn about navigating its fluctuating and sometimes unpredictable symptoms.
What has your experience been like? What symptoms have surprised you the most? What information or guidance has been most helpful for you?
#longcovid #COVID19 #CheckInWithMe #Spoonie #ChronicIllness #PosturalOrthostaticTachycardiaSyndrome #ChronicFatigue #Fibromyalgia #MentalHealth
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This migraine appears to want to be my friend and comes back daily. So after two ER visits the 2 nd one gave me the right meds. I got a CT scan followed up w my doc. Checked al kinds of bloodwork and vitamin D and I am healthy as ever at 65. Why I see my doc and tell him I spend 90% of my time in bed and then I get to do it some more. I turned on a comedy show and laughed a lot. I feel like every few years I just got to check and see if anything is wrong nope just migraines and fibromyalgia and chronic fatigue. Oh well a good week spent now back to the couch to finish Kevin James special.
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I was recently diagnosed as having hEDS in addition to my longtime diagnoses of fibromyalgia, chronic fatigue and psoriatic arthritis. It is the diagnosis however, that finally connected all the dots - early onset osteoarthritis, muscle tears (1st one at age 8), and many other things that didn’t quite fit. So, learning about hEDS and how that affects things going forwards. #EhlersDanlosSyndrome
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This morning routine has been incredibly powerful for me. Morning grounding really helps our nervous system! If you try it, let me know if you try it!
#Addiction #AnorexiaNervosa #Anxiety #Agoraphobia #AutismSpectrumDisorder #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #BipolarDepression #BackPain #ChronicPain #ChronicFatigue #CeliacDisease #Cancers #Grief #Lupus #AutonomicDysfunction #PTSD #Hemophilia #SjogrensSyndrome #SuicidalThoughts #Selfharm #Selfcare #MentalHealth #Schizophrenia #KidneyDisease #ObsessiveCompulsiveDisorder #ChildLoss
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I've recently discovered an amazing accessibility program of a local museum. There are so many options for people with different disabilities! I personally used a wheelchair that you can rent there with zero struggle. I'm an artist myself so visiting art galleries is very important to me, but my mobility issues and chronic pain make it impossible to stand and walk for long enough. I'm so happy to have a chance to enjoy art in person again!
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So, after years of the drs saying that while yes, the blood works confirms i DO have lupus, as i have for many years but i must be exaggerating the intensity of the pain, but my blood markers were not showing THAT huge of disease activity, they (the VA) agreed to send me to a fibromyalgia specialist who actually read my medical records (unlike the VA) and diagnosed me with also having fibro. So what is your advice? Not the basic stuff like pace yourself, the lupus als gives severe pain and chronic fatigue so i know that, but what other advice do you have? The stuff they don’t put in the medical books? The real life things that work and/or don’t work? Any advice at all
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I have been taking my two year old to the butterfly garden a lot this winter. Breathing in the hot, humid, sweet air always brings a smile to my face. This has been a snowy bitter cold winter so the escape to green growth and warmth is even more important. Don’t forget to enjoy the beauty around you and look at things through the eyes of a child. Trust me you will be happier! #Butterfly #MentalHealth #Depression #EhlersDanlosSyndrome #Anxiety #ChronicFatigue #POTS
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Hello everyone!
I am wondering if there would be interest in a new group focused on healing nervous system dysregulation and holistic health.
Many people struggling with various mental health and physical issues or “mystery conditions” have the underlying issue of the sympathetic nervous system having “gotten stuck” in an alert state and lost its flexibility to move to restorative states. This can go with PTSD/CPTSD, occur after prolonged periods of stress and anxiety and also have physical contributors.
It can lead to a myriad of symptoms and be hard to discover in healthcare systems that often don’t look at the whole body and instead of dealing with the root cause, treat only symptoms.
I am myself on a journey trying to heal after many years of mental health and health struggles and not understanding the whole picture. I am hoping to connect with others, to share my knowledge, learn from you, and to support each other along the way.
The group would be relevant for you if you:
- Know or suspect you have a dysregulated nervous system
- Struggle with high functioning anxiety, chronic stress, chronic insomnia and/or chronic fatigue
- Are living in survival mode, always feeling like you have to be ready
- Have a myriad unclear symptoms, no clear diagnosis or one that explains the whole picture
- Want to approach your health and well-being more holistically – meaning taking care of all aspects of you, healing the root causes and not just treating symptoms
The group could be helpful through:
- Sharing what has been helpful for us, new things we’ve learnt, resources
- Checking in on each other, see where we are at
- Helping to hold each other accountable and stay on track on our health journeys
If anyone would be interested or if there already is a group like this I’ve missed – let me know.
Hope you are having a good or at least okay day!
#nervoussystemdysregulation #MentalHealth #PTSD #ComplexPosttraumaticStressDisorder #Anxiety #Insomnia #ChronicFatigue #Undiagnosed #ChronicIllness #Addiction #Dissociation #Burnout #ChronicFatigueSyndrome #Trauma #Depression #Migraine #Neurodiversity #heal #Holistic
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