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Against The Odds

#Bipolar2 #Fibromyalgia #chronic Migraines #occipital Neuralgia #GeneralizedAnxietyDisorder #Depression

Let me preface this by saying I have an icky cold so I wasn't at my best last night. I also need to say the people I am going to refer to are intelligent, well respected individuals. They are my family and I do love them. But I worry about them.

So the thing is I have a degree in the medical field. I worked in my chosen field for about 20 years. I will be the first to admit that doctors and medicine are not perfect. Science is not exact.

Well, everytime my family gathers together a discussion arises about how bad doctors are and how this or that medicne is poison. Each of them have a story to prove their theory. Only herbs and new age potions, if you will, should be used, nothing manufactured. Last night at Thanksgiving dinner it was no different. The conspiracy stories ran wild about how we were being lied to, used and so on. Usually I keep quiet, inwardly rolling my eyes. I couldn't do it last night. My anxiety about the preposterous things they were saying was too much. I blurted out my disagreement instead of calmly explaining why what they were saying was misleading information. You would have thought I had lost touch with reality as all six people at the table began bombarding me with one outlandish statement after another about how I had been brainwashed by "the hospital machine" and "Big Pharma" and so on. One even brought up my willingness to receive a COVID vaccine as proof of how gullible I was. I sat with my jaw dropped open in disbelief. Not a single person came to my defense. As the discussion took off into how COVID was a hoax (I had 10 beloved people die from that hoax), I finally I asked that we talk about something else. They obliged.

My evening was ruined. Not only did I not feel well, but I felt like an outsider with my own family. I felt like I had done something wrong. In the past when I have attempted to defend the medical community, I have gotten shot down but not quite so brutally. I'm not one to stay quiet when I feel someone is way off base but last night was something. I will admit I don't do well with conspiracy talk.

I am very sure of myself and my belief in modern medince. I don't know where I would be without it. I guess the fact that my family can just callously ignore my knowledge hurts more than I want to admit.

Today, my cold rages on and I feel lonely. It's times like this that I wish I had a partner, someone in my corner to be on my side and shelter me (que the umbrella in the picture). I'm having a bit of a pity party. I guess I just needed to write it all out. Thank you all for being a part of Mighty Together.

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Do you enjoy shopping in stores during the Black Friday Sale? If not, what is your alternative?

I used to shop during those sales and got a smart tablet a couple of years ago and a smart TV. I haven't done this since COVID-19; it's too much work to keep myself out of panic mode when people are surrounding me in the store like that. So now if I see something online in the Black Friday sale, I will buy it that way, but standing in the 3 4 hours 4-hour-long lines, in my opinion, that's for the birds. #CPTSD #PTSD #MentalHealth #Anxiety #Depression #Trauma #ComplexPosttraumaticStressDisorder

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Dating whilst chronically ill?

How do you guys feel about dating whilst chronically ill? I have been suffering from Long Covid-ME/CFS for 3 years now, and from a mixed personality disorder (+ autism) for all my life. Even before Covid, my dating experience as a sick/neurodiverse middle-aged queer woman has been difficult. With the fatigue syndrome things haven't become any easier. What's making it worse is that according to mainstream society, disabled and chronically ill folks apparently aren't supposed to have a love life at all, nor to want one in the first place. I see little representation of sick and disabled people who are dating and/or sexually active apart from the occasional token (mostly still young and pretty) person in a wheelchair.

So it's easy to doubt whether I get to have a fulfilling dating experience, or at least a try at it. I have been on dating apps for many years and they used to work for me as long as I was still able-bodied, young(ish) and pretty by mainstream heteronormative standards. Now, even being well enough to actually meet somebody for a coffee is a challenge, and tbh I'm not sure about an accessible pathway towards sex and intimacy, given that the old models including partying and alcohol are no longer accessible to me. I've recently had to cancel a few dates due to bad health and it makes me wonder if (and how) I am still able to enjoy fulfilling intimate relationships or even casual encounters. How do you guys go about it? What helps you to approach dating in a way that is respectful of your needs and limitations? What helps you with acceptance if you find it temporarily inaccessible?

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my philosophy and the importance of not forcing things

Couple of things:

I could’ve sworn I made a post on Sunday, but I don’t see it in my activity log. If it was real and I didn’t just imagine it, hopefully it wasn’t offensive or off topic or anything.

Second, I struggle with knowing whether someone is being helpful or is just being negative. So I wrote this in my journal yesterday: Constructive criticism is considerate. Inconsiderate criticism is complaining. Complaining is ok if you admit that you are un knowledgeable on the topic and need advice. Otherwise it can derail progress and maybe get others stuck too? Idk, just something that popped into my head.

Third, I think I’m gonna just start to post every other day, because it’s tough to write a coherent post every day. I don’t have to have a reason or related concept to justify this, but I think the philosophy of the tao is good for this. If I’m not misremembering, it advocates for following the path that is most natural, or going with the flow and not forcing or resisting to the universe’s path. After hearing about the concept of determinism, I was a bit distraught at the idea that we could be simply playing out a sort of movie that appears to us to be fully in our control. Of course, we can never actually know for absolutely certain the future before it unfolds. But to hear that the idea of the universe having a path of least resistance being an millennia old concept was amazing to me. All this to say I’m not forcing posts unless I have something to say lol. 😂

Lastly, I was reminded of the genre of music called “city pop” that blew up during covid on streaming platform twitch.tv. The genre for me evokes feelings of driving during a temperate autumn evening when it’s the golden hour.

Song is Baby talk - Himiko Kikuchi

Track: m.youtube.com/watch

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I'm new here!

Hi, my name is Megan. I've taken a LOA from work due to PEM (symptom of Long Covid and/or CFS) and possible mold illness. I'm not sure how to live life in my current state. The exhaustion is extreme. Any suggestions?

#MightyTogether #Anxiety #Depression #ChronicFatigue

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