Osteoarthritis

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How to deal with chronic pain?

Move..I found this out the hard way because I had to take a very physical job and after about a month of significantly higher pain- I noticed a shift. Things actually started to subside and the flares got less. I guess I was building strength and stamina without realizing it. Although I did already walk daily, this was different. I didn’t get to sit or stay down like I was used to. The pain was always head to toe and I would find myself wrapped in heat a lot. Insulating myself - but also from life. Living with pain sucks, but not actually living is so much worse. I lost my job. I’m not getting in that bed. I don’t care if I walk in circles. 🤭#RheumatoidArthritis #Fibromyalgia #EhlersDanlosSyndrome #Osteoarthritis #acdf #Arthritis #BackPain

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My lower half needs to be replaced

My lumbar is mangled with regrowth of spinal epidural lipomatosis and 2 new spots of stenosis. My right hip is bone on bone. Both hips have femoral acetabular impingement, bursitis, osteoarthritis, and bone spurs. I'm in so much pain. And that's just the bone stuff.
I need a break away from home for a few hours. To sip coffee and eat a bragel sandwich. It's so comforting and delicious. I want a grilled cheese sandwich really badly. Like down into my soul.

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This onslaught of pain is exhausting

OMG my left hip is throbbing again. And my eyes...might as well be grapes at a wine stomping festival. I didn't sleep last night. I've been eating very poorly lately. I've been drinking IQ Joe instead of making myself a pot of coffee. Which is fine, it's strong coffee and it's toasted hazelnut flavor. It's delicious.
I have a big stash of coffee but I just got some special tea from August uncommon. And I want to have a tea party with my darling stupidhead wifey Pauley. I was thinking chicken salad sandwiches and biscotti and cinnamon tea for Pauley and pumpkin caramel rooibos tea for me. It's ridonkulously delicious. I think she might enjoy it.
I hate being home alone. I end up curled up in my bed with my blankie and lux my cow baby.
I am sweating quite a lot and I'm overheating. My psychiatrist thinks the sweating is being caused by my Zoloft so he reduced my dose. I guess my frequency of sweating has decreased. He said he wants to get me off Zoloft completely and increase my imipramine. I used to take 75mg of Zoloft and now I'm down to 50mg.
I'm gonna go lay down and meditate for a while...and other lies I tell myself.
#FemoralAcetabularImpingement #BackPain #Bursitis #Osteoarthritis #RheumatoidArthritis

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Life… I guess

I have been struggling lately. Somehow all my medical history now wants to make me weak from the knees and push me down. I got diagnosed 2016 knee OA, 2024 endo stage 4 excision surgery and total hysterectomy for adenomyosis. 2025 total knee replacement for treating OA. This year fibromyalgia diagnose. I have normalized pain for the last 17 years of my 42 y of life and I feel tired. Tired to have been able to build still a career and life to myself and children and for everyone outside I’m not allowed to be weak. Actually no one believes the seriousness of my pain bc it doesn’t show. I have been called hypohondric, attention seeker, drug addict and so on. And it’s so isolating. To have a successful life from the outside and be trapped in my own body wo a right to step back and be vulnerable and people around me say it’s in your head…I do see psychiatrist every week for the past 9 months or so and I have tryed not to abandon myself…. But f**ck it’s hard.
#Depression #Endometriosis #Fibromyalgia #Osteoarthritis

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The legacy of hypermoble joints, looking back

I am 68. The best clinical advice I want to pass on is to do the joint surgeries while you’re still physically strong, do not follow the old advice to wait until you can’t tolerate the joint pain. I am so fortunate to have a great team from a physical trainer, my physical therapist, my various physicians, my psychiatrist etc. living near medical schools & teaching hospitals helps. my orthopedic surgeons are my best friends, and pain management physicians are on speed-dial. The last four years with a personal trainer has helped me to be stronger and more physically adept then I was at 30. Even though I didn’t break bones in my constant casual falls over the years, at this age I needed to stop falling. Now, those lovely, super flexible joints have significant osteoarthritis. the medial meniscus in both knees were removed when I was 20, with the predictable deterioration overtime. my left knee replacement last August has gone very well, and I’m actually looking forward to the right knee replacement next month. have you heard of reverse shoulder replacements? I have and I have two scheduled down the road. so about 18 months of joint replacement surgeries ahead of me. However, from other perspectives, life is better than ever. But I will keep on top of the steroid injections for the arthritis in my thumbs….

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I'm new here!

Hi, my name is Glory74. I'm here because
I am struggling. Was diagnosed with osteoarthritis and fibromyalgia this past summer after seeing a multitude of doctors who could not figure out what was wrong with me. This thing literally seemed to strike me one day and been downhill since. I was completely normal living life and working full time as an ER nurse. Loved to travel, spending time with my husband, and enjoying my grandchildren. This thing has affected every area of my life. Have tried the usual treatments and meds they throw at this trash can of a diagnosis. Is there any hope for me? I’ve turned strongly to my faith and that’s only thing keeping me from having some pretty bad thoughts. #MightyTogether #Fibromyalgia

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Recently diagnosed

I was recently diagnosed as having hEDS in addition to my longtime diagnoses of fibromyalgia, chronic fatigue and psoriatic arthritis. It is the diagnosis however, that finally connected all the dots - early onset osteoarthritis, muscle tears (1st one at age 8), and many other things that didn’t quite fit. So, learning about hEDS and how that affects things going forwards. #EhlersDanlosSyndrome

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