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Infused by Melanie R.

I plead as I receive.
The blood was shed for me.
I placed it on the cross,
now blessings for the loss.

My spirit, soul, and body-
all healed…
Infused His name.
He carried it all on willfully
my suffering-
for my gain.

An act of faith found worthy.
My savior,…blood was shed.
I take into my body,
the wine filled medicine.

She reached out with one touch.
A faith found strong and true.
For answers in the darkest night,
endurance shining through.

An answered prayer for healing,
soft on the wings of doves.
A witness to her suffering-
sent lifelines from above!

Malachi 4:2
But to you who fear my name, The Sun of Righteousness will rise with healing in its wings…And you will go free leaping with joy…

God is faithful! Rise & stay strong Mighty health warriors! Healing will come!
You’re already free!
IVIG immunotherapy was approved and I received my first dose today!
Praise God for this healing and answered prayer! Thank you Jesus!

#MitochondrialDisease #RareDisease #ChronicIllness #ChronicPain #InsideTheMighty #RheumatoidArthritis #SjogrensSyndrome #HypothyroidismUnderactiveThyroidDisease #IrritableBowelSyndromeIBS #POTS #PosturalOrthostaticTachycardiaSyndrome #ChronicInflammatoryDemyelinatingPolyneuropathy #RareDisease #ChronicIllness

(edited)
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See full photo

Infused by Melanie R.

I plead as I receive.
The blood was shed for me.
I placed it on the cross,
now blessings for the loss.

My spirit, soul, and body-
all healed…
Infused His name.
He carried it all on willfully
my suffering-
for my gain.

An act of faith found worthy.
My savior,…blood was shed.
I take into my body,
the wine filled medicine.

She reached out with one touch.
A faith found strong and true.
For answers in the darkest night,
endurance shining through.

An answered prayer for healing,
soft on the wings of doves.
A witness to her suffering-
sent lifelines from above!

Malachi 4:2
But to you who fear my name, The Sun of Righteousness will rise with healing in its wings…And you will go free leaping with joy…

God is faithful! Rise & stay strong Mighty health warriors! Healing will come!
You’re already free!
IVIG immunotherapy was approved and I received my first dose today!
Praise God for this healing and answered prayer! Thank you Jesus!

#MitochondrialDisease #RareDisease #ChronicIllness #ChronicPain #InsideTheMighty #RheumatoidArthritis #SjogrensSyndrome #HypothyroidismUnderactiveThyroidDisease #IrritableBowelSyndromeIBS #POTS #PosturalOrthostaticTachycardiaSyndrome #ChronicInflammatoryDemyelinatingPolyneuropathy #RareDisease #ChronicIllness

(edited)
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I’m new here!

Hi, my name is Lesa. I’m here to interact with others who suffer from a chronic disease and/or chronic pain.Being a RN, Certified Master Fitness trainer & all the things that go with normal daily life mine started just started slipping away. My body was failing me.This first post I’ll keep it short. All I’m saying if the government shouldn’t come between a woman & her doctor it should apply for those too sick to work & have to live in pain day in and day out. As a nurse & now chronic pain, fatigue, multiple hospitalizations , multiple organs, all glands, anemic etc etc.it makes me angry these politicians are practicing medicine without a license and leaving us to suffer due to their ignorance of medicine.one has a disease like Primary Sjögrens Disease it’s systemic. Yes you’re going to be on a lot of meds and it carries some horrific pain. All it took was my regular pharmacy was out of Norco so my husband went to Walgreens. I had stopped using them 3 years ago because of the pharmacist. I’ll share that later. He was so ugly to my husband ( and he was VP of a huge hospital) then called me. Told him to give it back and I’d fill it somewhere else. He filled it then turned my physician in. Now I’ve got to be tapered off. This is why opioid deaths are up after making their stupid law but the written prescription is way down. It’s Fentanyl. Chronic pain patients are finding a street pharmacist. Big cartel. Big government.

#MightyTogether

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What are your dental hygiene habits?

Brushing, flossing, and cleaning our teeth is, quite frankly, a hygiene task that most non-disabled folks take for granted. There are a lot of things that can make it hard: mobility issues, depression, brain fog (sometimes you just forget!), sensory sensitivities, and chronic pain to name a few. It can also be especially tough if you have an autoimmune disease like #SjogrensSyndrome or #Lupus where you produce less spit than the “average Joe.”

So, on that note, what are your habits? Is it hard for you? Is it something you do no matter where your money and body are at for the day? What tips do you have? (Gentle reminder: This is a safe space. No judgement about what you can or can’t do!)

🦷 P.S. Here’s a good Mighty story about the topic, too: How Long-Term Hospitalization Severely Impacted My Dental Health

#MightyMinute #MentalHealth #ChronicPain #ChronicIllness #RareDisease #Disability #MentalHealth #Autism #Anxiety #Depression #CheerMeOn #Migraine

How Long-Term Hospitalization Severely Impacted My Dental Health

"My oral health was completely overlooked."
76 reactions 31 comments
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See full photo

What are your dental hygiene habits?

Brushing, flossing, and cleaning our teeth is, quite frankly, a hygiene task that most non-disabled folks take for granted. There are a lot of things that can make it hard: mobility issues, depression, brain fog (sometimes you just forget!), sensory sensitivities, and chronic pain to name a few. It can also be especially tough if you have an autoimmune disease like #SjogrensSyndrome or #Lupus where you produce less spit than the “average Joe.”

So, on that note, what are your habits? Is it hard for you? Is it something you do no matter where your money and body are at for the day? What tips do you have? (Gentle reminder: This is a safe space. No judgement about what you can or can’t do!)

🦷 P.S. Here’s a good Mighty story about the topic, too: How Long-Term Hospitalization Severely Impacted My Dental Health

#MightyMinute #MentalHealth #ChronicPain #ChronicIllness #RareDisease #Disability #MentalHealth #Autism #Anxiety #Depression #CheerMeOn #Migraine

How Long-Term Hospitalization Severely Impacted My Dental Health

"My oral health was completely overlooked."
76 reactions 31 comments
Post
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Loony Tunes of Suffering by Melanie R.

Loony Tunes of Suffering

Warner Bros. created years of laughter through their characters on a seemingly unattainable chase. I just never would’ve expected these childhood cartoons would’ve given a foreboding, and biblical representation on what was to come later in life; as chronic pain/rare chronic illness, and my spiritual growth were broadcasted on the television of my adult life.

As children, as soon as we heard the symphonic xylophone intro of Merrie Melodies, our heads bobbed along, and we stared wide eyed at the zoomed in faces featuring Bugs Bunny, Daffy Duck, and Yosemite Sam.

The music was our cue to gather round on the living room floor, and get ready to watch the show! Thinking back, more than just running in circles, maybe these characters had a story to tell other than their famous taglines.
Were they all actually trying to tell a vision?

Eh- what’s up doc?

Like Bugs Bunny, inquisitively I have asked this question to the many physicians I have seen over the years after my full immersion into this Technicolor world of chronic illness and invisible disability. Like me, I am not sure if Bugs received a satisfying answer to that question either.

“Suffering succotash!” Mel Blanc served up suffering succotash to Sylvester‘s famous catchphrase to Tweety Bird.
Although Sylvester never actually caught Tweety, he never gave up on his pursuit.
An example to continue on in advocating and persevering all these years later through the lunacy of medical complexities.
I was certain Sylvester was attempting to free Tweety from his cage so that they could play together.
Suffering succotash has numerous dictionary translations, and surprisingly, one meaning suffering savior. This bringing to mind how I would humbly and diligently call upon the Savior Jesus to free me from the cage of suffering.
Daffy duck was also known to call out for suffering succotash when he was perplexed with life.
Arriba translated as encouragement.
While running from his adversary, Speedy Gonzales called out, “Arriba Arriba. Andale, andale!”, as a cloud of dust covered ensnarements.
It was another telling sign to be quick to call for encouragement!

One of the most memorable characters was the red bearded, gunslinger Yosemite Sam, and how he loved to harass Bugs Bunny. What was Bugs’ his reaction to Yosemite Sam’s temper tantrums?
He had no fear, and he stood tall while continue to munch on his carrot!
Yosemite Sam could have had a unwritten Christian background, because he told Bugs Bunny to say his prayers!
So many prayers are needed to endure long-suffering, and Yosemite Sam had sound advice.
Rare chronic illness/chronic pain can feel as heavy as the grand piano falling from the sky out of nowhere every day. Sometimes in suffering, it seems the only downy soft commercial break is the time spent in connection to God.
As we spend our time in prayer, the word of God comforts us just like the fluffy towels the downy bear bounced on.
Back then I didn’t know the role these catchphrase subliminal messages would have had on my adult life and suffering, but looking back, they were in some ways pixelating God’s love on a Saturday morning rerun of Looney Tunes.

#MitochondrialDisease #SjogrensSyndrome #RareDisease #Disability #HypothyroidismUnderactiveThyroidDisease #PosturalOrthostaticTachycardiaSyndrome #InflammatoryBowelDiseaseIBD #ChronicIllness #ChronicPain

(edited)
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See full photo

Loony Tunes of Suffering by Melanie R.

Loony Tunes of Suffering

Warner Bros. created years of laughter through their characters on a seemingly unattainable chase. I just never would’ve expected these childhood cartoons would’ve given a foreboding, and biblical representation on what was to come later in life; as chronic pain/rare chronic illness, and my spiritual growth were broadcasted on the television of my adult life.

As children, as soon as we heard the symphonic xylophone intro of Merrie Melodies, our heads bobbed along, and we stared wide eyed at the zoomed in faces featuring Bugs Bunny, Daffy Duck, and Yosemite Sam.

The music was our cue to gather round on the living room floor, and get ready to watch the show! Thinking back, more than just running in circles, maybe these characters had a story to tell other than their famous taglines.
Were they all actually trying to tell a vision?

Eh- what’s up doc?

Like Bugs Bunny, inquisitively I have asked this question to the many physicians I have seen over the years after my full immersion into this Technicolor world of chronic illness and invisible disability. Like me, I am not sure if Bugs received a satisfying answer to that question either.

“Suffering succotash!” Mel Blanc served up suffering succotash to Sylvester‘s famous catchphrase to Tweety Bird.
Although Sylvester never actually caught Tweety, he never gave up on his pursuit.
An example to continue on in advocating and persevering all these years later through the lunacy of medical complexities.
I was certain Sylvester was attempting to free Tweety from his cage so that they could play together.
Suffering succotash has numerous dictionary translations, and surprisingly, one meaning suffering savior. This bringing to mind how I would humbly and diligently call upon the Savior Jesus to free me from the cage of suffering.
Daffy duck was also known to call out for suffering succotash when he was perplexed with life.
Arriba translated as encouragement.
While running from his adversary, Speedy Gonzales called out, “Arriba Arriba. Andale, andale!”, as a cloud of dust covered ensnarements.
It was another telling sign to be quick to call for encouragement!

One of the most memorable characters was the red bearded, gunslinger Yosemite Sam, and how he loved to harass Bugs Bunny. What was Bugs’ his reaction to Yosemite Sam’s temper tantrums?
He had no fear, and he stood tall while continue to munch on his carrot!
Yosemite Sam could have had a unwritten Christian background, because he told Bugs Bunny to say his prayers!
So many prayers are needed to endure long-suffering, and Yosemite Sam had sound advice.
Rare chronic illness/chronic pain can feel as heavy as the grand piano falling from the sky out of nowhere every day. Sometimes in suffering, it seems the only downy soft commercial break is the time spent in connection to God.
As we spend our time in prayer, the word of God comforts us just like the fluffy towels the downy bear bounced on.
Back then I didn’t know the role these catchphrase subliminal messages would have had on my adult life and suffering, but looking back, they were in some ways pixelating God’s love on a Saturday morning rerun of Looney Tunes.

#MitochondrialDisease #SjogrensSyndrome #RareDisease #Disability #HypothyroidismUnderactiveThyroidDisease #PosturalOrthostaticTachycardiaSyndrome #InflammatoryBowelDiseaseIBD #ChronicIllness #ChronicPain

(edited)
5 reactions 2 comments
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Struggling with friendships

How do you handle a friend/friends that only wants to see and hang out with you when it’s convenient or entertaining, or on their turf while being disabled? #Fibromyalgia #ChronicFatigue #SjogrensSyndrome #sjogrens #MajorDepressiveDisorder #Anxiety

14 reactions 4 comments
Post

Struggling with friendships

How do you handle a friend/friends that only wants to see and hang out with you when it’s convenient or entertaining, or on their turf while being disabled? #Fibromyalgia #ChronicFatigue #SjogrensSyndrome #sjogrens #MajorDepressiveDisorder #Anxiety

14 reactions 4 comments
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Whoa I’m On Fire!

Springfield was on fire.

Johnny had a ring,

Billie didn’t start it,

Taylor-

Fire and Rain.

7 times the furnace,

three boys trust His name.

They held on in the burning …

walked out from that flame.

🔥🙏💪🏻🕊️🛟✨
Keep trusting in your fire!

#MitochondrialDisease #sjogrens #IrritableBowelSyndromeIBS #ChronicPain #RareDisease #PeripheralNeuropathy #ComplexPosttraumaticStressDisorder #PosturalOrthostaticTachycardiaSyndrome

(edited)
1 reaction