What This 'Odd' Photo of My Son on the Autism Spectrum Can Teach Us
Does anything look odd to you?
Possibly not – until you recognize that #39 spends 90 percent of his time not in “the group.”
#39 is my son, Tucker.
This is through no fault of his coaches or teammates. It’s just how he is — rarely a part of the group.
Parents of children on the spectrum, hold your breath. Well, honestly – any parent, hold your breath. This post may make you cry.
In fifth grade, a researcher at a local university interviewed Tucker. The researcher, who was studying children with autism, contacted me to see if I thought Tucker would be a good candidate. I replied with an emphatic yes. Tucker is his own best advocate; he’s an advocate for other children on the spectrum.
Since he’s a minor, I stayed for the interview. What a phenomenal experience — to hear your child accurately describe his difficulty with peer relationships is amazing and heartbreaking.
The researcher began by getting to know Tucker. About 15 minutes in, he began asking the questions.
R: “Do you know other children with autism?
T: “Oh sure. A few kids at my school. But we’re all different. Do you know about the spectrum?”
R: “Yes, I know about the spectrum. So, are you friends with them?”
T: “Kind of. Sort of. I mean, I guess so. Not really. I know who they are, but they wouldn’t be overnight friends.”
R: “OK. How about other kids at your school? You’re really funny and seem like an awesome kid; I bet you have lots of friends.”
T: “No, I don’t.”
R: “Really? I’m sorry, Tucker; that surprises me. I thought you would have lots of friends. I’m really sorry that you feel you don’t have friends.”
T: “Oh, I have friends. Lots of them. My mom’s friends. The people that she works with really like me. Then I have my dad’s friends; I have all kinds of grownup friends. My teachers are my friends too – and my coaches – Coach Velky, Coach Chaplin, Coach Staack, Coach Snyder, Coach Eckenrod, Coach Leonard. They are my friends. And Lisa from Kwik Star – she’s my friend. She always makes me smile and always talks to me. It’s OK though. Really. The kids make fun of me behind my back when they think I can’t really hear them. I can tell they don’t really want to be my friend. They don’t choose to sit by me. They don’t include me in their parties. They don’t take the time to try to understand. So, I decided to just be friends with grownups. Really it’s a lot easier. I know they will take the time to try to understand me. They will be kind to me. They will not make me feel sad. So, I just choose to be friends with grownups.”
The researcher just looked at me. I stared at Tucker with tears in my eyes.
When we got home, he went to play with our Xbox.
When we got home I went into the bathroom and cried.
I didn’t cry because he has difficulty with peer relationships. I knew this would be a factor – I was anticipating that difficulty. I know he has several boys who are friends – while he may not be on birthday party lists – they would never allow someone to be mean to him.
I cried because he was (and is) OK. He understands his experience. He was (and is) mature beyond his years – making the conscious choice to be with those who want to be with him and not worry about those who don’t.
So, that picture above? It used to bother me – but it doesn’t anymore.
I’ve realized that if it doesn’t bother Tucker, then it cannot bother me.
Tucker has taught me so much about what it is important in life.
Being with those who want to be with us… not worrying about those that don’t.
It took me 38 years to learn that; it took him 10.
Read more from this journey on 366 Days of Autism.