Ever since I was a young child, I would perk up when I heard the worlds “vacation,” “airline ticket” or “hotel.” It’s still hard for me to contain my excitement. When I was young I was diagnosed with having Asperger syndrome and, as we know today, sometimes people with the condition develop obsessions. Travel just happens to be my passion. Notice how I turned the word “obsession” into the word “passion?”

Back in junior high school when most kids were home watching cartoons, I downloaded and began using easySabre, an older version of what travel agents use today to book clients on their trips. I also received an Official Airline Guide from the San Jose International Airport as part of their monthly newsletter. This OAG allowed me to see what flights operate out of the San Jose airport, and I would memorize the airport codes.

I would call up automated flight information services back in the day before speech recognition technology existed. Because you used to have to spell out the name of the city you were departing, I kept thinking to myself, “How could I make this accessible to someone with a disability?”As the soothing voice of the automated system read back the flight details, I began creating a spreadsheet.

In 1998, my parents took a three-month trip to Europe. I planned all the details. Mind you, this was before online booking services such as Expedia were popular. I fondly remember getting our Eurorail train passes and still recall the travel agent using her computer to book our tickets. I watched her in amazement. That was the moment I realized I wanted to be a travel agent.

Fast forward to September 2008. I found a degree program in assistive technology from California State University, Northridge. I was amazed by all the new technology and communication devices, but I always had travel in the back of my mind.

I began to look into ways assistive technology could be used for travel. I considered topics such as how an individual who is nonverbal would access the various travel services and museums. I kept asking myself questions like how the museum could translate audio guides onto a device so users could touch pictures and the device would speak a selected phrase.

Last January, I earned a certificate in Travel and Tourism and passed the Travel Agency Proficiency Exam, making me a certified travel agent. In July, I joined Cruise Brothers as my host agency. I work on selling wedding cruises.

This past October, I decided to learn more about communication devices for people who are nonverbal. I searched YouTube for “Communication Devices Assistive Technology and Autism.” This is how I found “Kreed’s World: A Complex Journey Through Autism,” which is managed by fellow Mighty blogger Erin Polk. I spent hours reading the Facebook page.

Erin and Kreed have inspired me not only to dive deeper into the field of assisted technology and travel but also to find more ways to travel the world. I would love to work on TV shows and create “How To” videos with various travel vendors from airports, airlines and hotels and tourist attractions to facilitate travel for people with disabilities.

The field of accessible travel is broad, and I would like to continue to focus on how communication devices play a roll in it. My dream is to work with DynaVox, the communication device manufacturer. I would love to have people like Erin and Kreed work with me on my mission to make travel more accessible everywhere.

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There was a woman who ostracized me for not keeping my child private. But yet she posted the video on her page along with many other articles of other children with disabilities all over her page. Why did she single me out? I don’t know. But I stopped and thought about it.

This is why I “real share”: autism isn’t going anywhere, and awareness is needed as numbers rise. How will people become aware if they don’t really see it? It’s not like Rain Man or any other stereotypes that autistic people get… I show and keep it real! And I don’t feel like I’m doing my job as my daughter’s advocate if I don’t keep it real!

I’m not afraid. I posted two awareness videos, and one of them helped a mother see that her child was like mine and, after seeing my video, she’s now getting her daughter evaluated. I’m about EI Awareness and if I can help one parent get his or her child evaluated, it’s worth it.

So, no, I’m not scared. I was at first and debated whether or not to post, but when it was published, parents were thanking me and saying they felt alone and that my video made them feel like they were not so alone. Before my page, that’s how I felt… alone. Now I’m not. I’m helping people and it’s helping me. I’m spreading awareness!

I have a college student doing a Powerpoint presentation on Zoey’s video singing “Twinkle Twinkle Little Star” to help bring awareness about music therapy. I show it ALL! Why? Because I’m an advocate, and not just for my child… for every child. If we all just hide away without showing the reality of autism, then we are not advocating awareness.

Autism is here… it’s real… and it’s time to accept it!

I share it all for her. I want her to look back and see how she fought and how truly amazing she is. Yes, there are times of frustration or meltdowns… but then there are the moments that I can watch over and over and cry because my severely nonverbal child sang “Twinkle Twinkle Little Star.”

That gives me hope and I want others to see it and have that same hope!

Follow this journey on Melissa’s Facebook page.


They say if you have one or two really good friends, you’ve got it made.

Well, if that’s true, then TJ, our 14-year-old with autism, has got it made.

For your typical 14-year-old, having a friend means hanging out at each other’s houses, texting, chatting on the phone, going to the mall and going to school events like football games or dances together.

For my son, a friend means a very different thing. 

To be TJ’s friend, you have to be patient. TJ may not talk to you that much — or at all.  He really likes talking about things he’s interested in but will forget to ask about things his friend may be interested in. TJ usually has his favorite movie or TV show running through his head, so he may blurt out lines at random times and make no sense. He does a great job at school, holding it together and contributing as much as he can, but when school’s out, his favorite thing is to play by himself at home. No hanging out for TJ. When he does, it’s with me, and I’m pushing his social interaction agenda.

TJ has had three or four good friends since he started school. These guys have joined him for “lunch bunch” with the speech language pathologist (SLP) so TJ could practice having a two-way conversation. They’ve practiced walking with him after school to the library in the center of town so TJ could feel more independent. They’ve helped him out here and there throughout his entire school day to keep him on track so he wouldn’t get in trouble for not paying attention or for fidgeting too much.

I’ve always said that these friends are TJ’s heroes. I’ve always been so grateful for these heroes — more than they will ever know.

One hero stands out. His name is Colby.

Colby and TJ met in sixth grade in a shared class, where Colby found TJ drawing (his favorite self-soothing activity). Colby asked what he was drawing and then asked if TJ could draw something for him. 

To Colby, TJ was never “the weird kid with autism.” To Colby, TJ was always just TJ. Funny. Sensitive. Kind. Fun to be with.

In seventh grade, I gave TJ $5 for an after-school bake sale. He was so excited; he couldn’t wait to buy as many chocolate chip cookies as his $5 would allow.

But somehow, throughout the day, he lost his money.

Colby found TJ crying. He explained how he lost his $5 for the after-school bake sale.

Without a word, Colby reached into his own pocket, grabbed $5, crumpled it and dropped it at TJ’s feet.  Then he pointed to it and asked, “TJ, is that it right there? On the floor? Is that your $5?”

TJ stopped crying immediately and picked up the money. He was so happy. 

And so was Colby — so happy to have helped his friend. I didn’t even hear about this story until about a year later. Colby didn’t do it for any praise. He did it to help his friend.

Colby’s the kind of of friend I always dreamed TJ could have. I never thought it’d happen. Colby and TJ are quite simply, buds. Colby’s mom calls them “Peas and Carrots.” That’s how well they go together.

two boys standing in front of brick wall

These Peas and Carrots are now in ninth grade at the big high school. Colby came with us to tour the school this summer. It helped TJ feel less anxious about starting a new school. 

Colby plays football. He’s also a wrestler. He has lots of friends. His social calendar is packed.

He also volunteers with the Unified Sports program at the school, working with kids with special needs in various sports programs like bowling and bocce — a program that makes sports fun for these kids. 

TJ doesn’t take Unified Sports. For him, when school is done, it’s done. TJ wants to go right home. He chose to participate in an after-school club about wildlife animals, but it was too long for him, and he now only attends half the meeting each week.

Even though activities take these two in different directions, they always find ways to connect. Colby and TJ and a few other boys meet with TJ’s guidance counselor for lunch. Colby and TJ share a math class, so they get to see each other every other day. And at Christmas, Colby continued his now two-year tradition of bringing TJ his own ornament of his favorite cartoon. This year it was from “South Park.”

TJ loves it and smiles every time he sees it. He didn’t want to put it away with the rest of the ornaments.

But the best part is that to TJ and Colby, they aren’t doing anyone any favors by being friends. They just really like each other. They truly care about each other. And they’ve got each other’s backs no matter what.

As Colby always says, “I just really like TJ. I am so proud to be his friend.” 

It’s more than this autism mom could have ever hoped for. 

Thank you, Colby. You are our hero.

Follow this journey on Laughing… Like It’s My Job.


What is autism to me?

I was diagnosed with autism at the age of 2. Though some people consider that to be far too young for a diagnosis, I think I’m one of the lucky ones. Some people, especially girls, don’t get a diagnosis until much later in life (and may still not have one) and spend their whole lives wondering why they’re so different from everybody else. I got to know right away, and I’m glad.

All my life, I’ve had very strong interests in particular subjects. At the age of 6, I had such a strong interest in the video game character Yoshi, I actually used the name Yoshi when inventing a new word: “yoshiablic.” This word was meant to describe pleasant feelings I get when engaging in my interests. Throughout the years, doing so involved doing a lot of research on my topic of choice.

At age 11, I would remember the grand opening date, the location, the number of stores, and the square footage of many malls, such as Lloyd Center in Portland, Oregon. I have had a variety of interests, including towers, bridges, roller coasters, cars, cities, malls, space shuttles, flowers, video games, the Titanic, volcanoes, astronomy, origami, cats, and bows. My latest interest is in particle accelerators used for scientific research (such as the Large Hadron Collider).

I have many talents as well. I graduated high school on time with a 3.81 GPA. I have extensive artistic capabilities, and an enhanced ability to understand myself. When it comes to social interaction, however, I tend to feel awkward and unwanted. I certainly do have a lot of friends, but I’m highly critical of myself and how I interact with people. Also, I tend to have more emotions than I know what to do with.

This was my downfall in school, as I had meltdowns on a fairly regular basis. My social and emotional issues have led to low self-esteem in this area. I cannot count how many times I’ve had significant issues at school that warranted a call to my mom. Schools throughout the years have handled me differently. In my opinion, middle school was the one that handled me the best.

The teachers there allowed me to be independent, encouraged me to engage in my interests, and had a safe place and safe people for me to turn to in times of stress.

As for the mistakes schools made with me, in high school, my independence was taken away when they required me to have a one-on-one aide when I went to class. This occurred following a severe meltdown in which I had cut myself out of anger. I felt embarrassed and that the teachers who forced the aides on me were very condescending. All they ever did was focus on the negative. Every time I tried to mention a way I had improved, they would either object to what I had to say or redirect the conversation to my weaknesses.

At the ages of 10 and 11, I was subject to what I feel was the worst mistake teachers have ever made with me. I had my interest in malls at this time. The teachers felt that my interests were a distraction in the classroom, so I was therefore not allowed to even mention them while in the school building. Until teachers made this rule, which occurred twice and lasted around a month each time, I actually enjoyed going to school. I felt violated as a result of this rule, and spent the next 11 years dwelling on it and trying to forgive the teachers that made the rule.

stephanie keyes the mighty Today, I use my experience with this wrongful rule to advocate for other autistic people. As unacceptable as this rule was, it taught me that autistic people are inseparable from their interests. Trying to take away or suppress our interests violates who we are and is almost criminal. I emphasize the importance of interests when I am asked how to best deal with autistic people. I believe interests are a natural, built-in coping mechanism that can enhance the lives of autistics.

So what is autism to me?

It’s a human brain programmed in a way that is far different from the average person. These differences often put the individual at a disadvantage, much like if an Android phone was in a world run by Apple phones.

Autism may have common aspects among people diagnosed with it, but no two autistic people are exactly alike. It is a mistake to assume every autistic individual is the same.

Some people (like me) struggle with extreme emotions and social awkwardness, while others can’t even speak or care for themselves. No matter the differences, no matter the struggles, we are all human and deserve to be treated accordingly.

The Mighty is asking its readers the following: If you could write a letter to the disability or disease you (or a loved one) face, what would you say to it? If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio.


It’s that time of year again — prom season. It’s the time of year when I avoid my Facebook newsfeed like the plague. The pictures of my friends’ teenagers eat away at me. I look at my friend’s son who was born around the same time as my son, Mike, and feel the giant gap between our boys. This year, the pain is compounded by the reality that Mike is a senior. He should be preparing for graduation, packing for college and attending the prom like the rest of his classmates. He is not.

Screen Shot 2015-03-23 at 3.42.33 PM
Mike on his first day of school.

If you follow my blog, you know how deeply I love, accept and celebrate Mike. I’ve rejoiced with every milestone, knowing how much effort it takes for him to master basic tasks. I do my best to approach each day with acceptance. I have mastered the art of burying my pain and remembering each day is a gift. This year, I’ve been having a difficult time pushing away the painful realities. I’ve received college brochures, been solicited for graduation announcements and even received a call from a military recruiter. There have been countless little “hits” I’ve had to push out of my mind and heart. At the beginning of the year, I was given a graduation packet which included a form to order Mike’s cap and gown. I glanced at it and stuck it in a pile of papers on my desk. I haven’t been able to open the packet since, and the deadlines have past.

While I’m proud of Mike’s accomplishments, I’m also feeling melancholy. He is graduating but returning to the same school for four more years. He will be there after his younger sister matriculates to college. He will be there until he is 22 years old.

After painful consideration, I’ve decided to skip Mike’s high school graduation ceremony. While I have no doubt that his school and teachers would provide whatever accommodations necessary to ensure his participation would be without incident, I’m just not sure there is anything that could accommodate me.

I know I won’t be able to sit in an audience and watch his typical peers transition to life without feeling immense sadness. I don’t want to listen to speeches about opportunities and the future. I don’t want to see Mike sitting in the crowd of students with headphones on and playing on his iPad. I don’t want to spend his graduation day mourning his reality.

I’ve decided to celebrate Mike’s accomplishments in a manner he will enjoy. I’ve decided to have a private party with his friends and family. I’ve decided to avoid the traditional and opt for the personal. In all honesty, a private party is probably the greatest graduation present I could give him. It’s an accommodation that will let him be ‘Mike.’

mikegrad

This post originally appeared on Autism Hippie.

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A group of strong, intelligent, courageous, loving, special needs mamas wrote these 19 things that only a special mom would understand. One of their most important qualities is that they have a sense of humor… something that is a requirement for sanity for the special needs parent.

1. If you’re standing in line at Target and your kid hugs the shopper in line in front of you because her coat is soft… you might be a special mom.

2. If you keep a trunk full of bubble wrap in your car for self-soothing… you might be a special mom.

3. If you keep a stress ball in every purse and backpack your family owns… you might be a special mom.

4. If you plan your outfit around whether or not you will able to carry a mid-meltdown kid out of a room, and have zero wardrobe malfunctions…you might be a special mom.

5. If you get lazy and don’t put the vacuum away for a couple days, and when you finally do, your kid keeps getting it out and putting it back in “its spot” in the middle of the living room because he now believes that’s where it “goes” and that’s where it NEEDS to be… you might be a special mom.

6. If you stop traffic to retrieve a hub cap that just fell off a semi, because this is your kid’s latest obsession and you know he’ll be thrilled… you might be a special mom.

7. If you go to a birthday party location three days before the actual party to practice what to do… you might be a special mom.

8. If your kid tells her sibling to stop breathing because it’s annoying… you might be a special mom.

9. If your kid “tells” you that your singing voice is ugly by putting his hands over his ears… you might be a special mom.

10. If you’re constantly tripping over objects grouped in three all around your house… you might be a special mom.

11. If your child gets punished at school for participating in an age-appropriate prank, but inside you’re cheering… you might be a special mom.

12. If you run to the grocery store late at night because you’ve just realized you’re out of grapes and if there are not grapes in your kid’s lunch, there WILL be a meltdown… you might be a special mom.

13. If you are excited instead of upset when your child continues to try to sit on the kitchen table because he is trying to imitate what his sister is doing… you might be a special mom.

14. If people don’t understand you because you say things like, IEP, TEIS, IDEA, OT, PT, ST, LRE, presumptive placement, supplemental aids and services, or ABA… you might be a special mom.

Mother and daughter on a beach

15. If you listen to Christmas songs 365 days a year… you might be a special mom.

16. If your friends say, “Let’s take the kids to {insert anything that requires waiting in line}” and you just laugh… you might be a special mom.

17. If you have carpal tunnel from continuously spinning the office chair around and around… and around and around in circles… you might be a special mom.

18. If you’re invited to a park or barbeque and your first question is not, “What can I bring?” “What time?” or “Where?” but, “Is it fenced in?”… you might be a special mom.

19. If a simple kiss means the world because that is how your child says, “I love you, Mom”… you might be a special mom.

This post originally appeared on Ramblings of a Special Mom

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