Why It's Important for Me to Walk, Even in Agonizing Pain


Dear Complex Regional Pain Syndrome (CRPS),

There’s no other way to say this to you: You are a monster.

But over the nearly 15 years that I’ve had to battle you, I’ve been the warrior, not you!

You tried to take away my teen years with your vice-gripping pain, but I fought back, and ran and figure-skated again. You tried to make my college years a living hell by making my body feel like it had been doused in gasoline, and a match lit… but again I fought back, and ran a half marathon in your honor.

You’ve been making my mid/late 20s an uphill battle that I’m tired of fighting, yet I’m still fighting against the most horrific monster I’ve come across, because monsters should never get to win.

kerry hussey the mighty

I walk in Central Park, NYC every June with other CRPS warriors who just want you to disappear. We walk to raise money to find a cure for you. We walk through your agonizing pain, just so one day, no one will have to walk in agony.

One day, CRPS, and I am positive of this, you will be doused in water, and your fire will go out, never again able to hurt me or my friends. Be prepared for this, CRPS, because MY time is coming… my time to put out the flames, and win over the monster that you are, forever.

The Mighty is asking its readers the following: If you could write a letter to the disability or disease you (or a loved one) face, what would you say to it? If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio.

Want to end the stigma around disability? Like us on Facebook.

And sign up for what we hope will be your favorite thing to read at night.


Find this story helpful? Share it with someone you care about.


Related to Complex Regional Pain Syndrome

What It’s Like to Grow Up With Autism

What is autism to me? I was diagnosed with autism at the age of 2. Though some people consider that to be far too young for a diagnosis, I think I’m one of the lucky ones. Some people, especially girls, don’t get a diagnosis until much later in life (and may still not have one) [...]

Watch Dolly Parton Give a Fan With Down Syndrome Ultimate Bragging Rights

Gage Blackwell, 12, from Lynnville,Tennessee, loves county music. He even has his own YouTube Channel where you can check out him singing some country tunes. Recently, Blackwell, who has Down syndrome, got the opportunity of a lifetime — he met Dolly Parton and got to sing a duet with the legendary country star. “Gage has been [...]

What I Got Wrong About My Daughter's Epilepsy Diagnosis

Epilepsy, you cannot have my daughter. There, I said it. For so long, I feared you and all that you mean. You came into my world with a bang, turning my funny, adventurous, outgoing 8-year-old into a helpless child who had to be put into a coma. You rocked our world in 2010 and at [...]

Why I've Decided Not to Attend My Son's High School Graduation

It’s that time of year again — prom season. It’s the time of year when I avoid my Facebook newsfeed like the plague. The pictures of my friends’ teenagers eat away at me. I look at my friend’s son who was born around the same time as my son, Mike, and feel the giant gap between [...]