Complex Regional Pain Syndrome

Everyday tasks

There are so many everyday things people take for granted that people with chronic illnesses or other disabilities cannot do.

For example:

Being able to get out of bed in the morning

Eating without pain

Pain-free days

Standing and walking

Being able to work

Maintaining friendships

Being able to exercise

Being independent

These are the simple things so many people take for granted each and every day, so when you think life is hard, remember it could be so much worse ❤️

#RareDisease #EhlersDanlosSociety #EhlersDanlosSyndrome #ChronicFatigueSyndrome #ComplexRegionalPainSyndrome #PTSD #ChiariMalformation #ChronicFatigue #ChronicIllness #MentalHealth

Having pain my whole life this is a BIG motto that I need.
Happiness can still be there for you. Just be willing to experience it.

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #Psychosis #MentalHealth #MightyTogether #MemoryLoss #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #sciatica

This was the first time I had really smiled since losing my best friend to suicide the year before.

It was hard to keep pressing forward when my whole world changed so so drastically.

My family and my faith that everything happens for a reason kept me holding on tight with all I had, putting one step in front of the other.
7 years later my brother was driving to school when an elderly man who was blind in one eye and almost blind in the other was driving when he should never have been. He slammed into my brother going 60mph.

We know my brother was protected by angels. He should never have survived but he did with only his wrist being broken and one of his lungs collapsing. But an officer had been driving behind him and saw the whole thing. He was able to call an ambulance right away and my brother had his lungs reinflated during surgery.

For the first time since my best friend died I KNEW that I could help Rylan, my brother, in a way I wished someone had been able to help and relate to me when Danny killed himself when I refused to date him.

Inadvertently, Rylan and I played parts in the death of a person.
It took me 10yrs to grieve and heal from Danny's death. I knew my purpose was to help Rylan in the way and with the words I needed so many years ago.

Later Rylan told me that my words helped him change his thinking of "why did this have to happen to me, my life was going great before this" to "everything happens for a reason and God has a purpose in all things, this trial is meant to be for my good somehow." Use that frustration to propell you forward as you learn why God chose you to be the one that man drove into."

Yes, bad things happen to good people but not to bring us down, to help us rise, overcome, and better ourselves in ways we never would have done on our own.

Within one hour of the accident, my trials and lessons from Danny's death was already changing and helping my brother for the better.

I worked hard to help him heal even when he wanted to pretend it never happened. But I knew and was guided by God to help Rylan each time. It was the first time in all those years I felt truly that I was meant to be right there.
Helping Rylan vet past the denial, the depression, and anger, bargaining, and finally to acceptance.

Rylan used the things he learned to then help others. We found he was really good at taking the info a psychologist gave him and using it to help others.

They had to do an investigation to make sure it wasn't Rylan's fault. Rylan's lawyer said I shouldn't have posted on Facebook to our friends and family before i went to the hospital but when Danny died I wished more than anything that someone posted about me and him so others knew I was involved. I never have regretted posting about it because Rylan got all the support I always wished I had. He had people to stand up for him instead of having to stand up to them all on his own, like I did.

Rylan's accident gave me purpose to put all my experiences to good use. Of course they found the man who was almost completely blind at fault. My family and Rylan did a farewell to the guy. His name was Charlie. He made a bad decision driving without a license when he couldn't see anything out of his right eye. It almost too Rylan's life along with him. All of us were glad it was Rylan who was protected by angels and that neither of them had anyone in their vehicles with them.

Rylan and I played a part both unwittingly, in the death of someone. It is a horrible club to be in but for me, it gave me purpose to help Ry just as I wished someone helped me in all the ways a death exacts.

After that I KNEW with confidence and no doubt, that everything happens for a reason and God never would make us suffer for no reason.

Everything has a reason and a purpose.

And I am so very blessed that some of my loss and suffering was able to help my little brother so much. And able to change his whole attitude and outlook.

What a gift!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #RareDisease #EhlersDanlosSyndrome #Endometriosis #CheerMeOn #Upallnight #IfYouFeelHopeless #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #Lymphedema #MentalHealth #MightyTogether #Migraine #MemoryLoss #PosturalOrthostaticTachycardiaSyndrome #PTSD #plantarfasciitis #PanicAttack #PanicAttacks #Psoriasis #PsoriaticArthritis #Psychosis #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #musclespasms #MultipleAutoimmuneSyndrome #Eczema

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #Hypersomnia #HighBloodPressure #Upallnight #JuvenileRheumatoidArthritis #Lymphedema #MentalHealth #MemoryLoss #MightyPets #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #BoneSplints

This was the first time I had really smiled since losing my best friend to suicide the year before.

It was hard to keep pressing forward when my whole world changed so so drastically.

My family and my faith that everything happens for a reason kept me holding on tight with all I had, putting one step in front of the other.
7 years later my brother was driving to school when an elderly man who was blind in one eye and almost blind in the other was driving when he should never have been. He slammed into my brother going 60mph.

We know my brother was protected by angels. He should never have survived but he did with only his wrist being broken and one of his lungs collapsing. But an officer had been driving behind him and saw the whole thing. He was able to call an ambulance right away and my brother had his lungs reinflated during surgery.

For the first time since my best friend died I KNEW that I could help Rylan, my brother, in a way I wished someone had been able to help and relate to me when Danny killed himself when I refused to date him.

Inadvertently, Rylan and I played parts in the death of a person.
It took me 10yrs to grieve and heal from Danny's death. I knew my purpose was to help Rylan in the way and with the words I needed so many years ago.

Later Rylan told me that my words helped him change his thinking of "why did this have to happen to me, my life was going great before this" to "everything happens for a reason and God has a purpose in all things, this trial is meant to be for my good somehow." Use that frustration to propell you forward as you learn why God chose you to be the one that man drove into."

Yes, bad things happen to good people but not to bring us down, to help us rise, overcome, and better ourselves in ways we never would have done on our own.

Within one hour of the accident, my trials and lessons from Danny's death was already changing and helping my brother for the better.

I worked hard to help him heal even when he wanted to pretend it never happened. But I knew and was guided by God to help Rylan each time. It was the first time in all those years I felt truly that I was meant to be right there.
Helping Rylan vet past the denial, the depression, and anger, bargaining, and finally to acceptance.

Rylan used the things he learned to then help others. We found he was really good at taking the info a psychologist gave him and using it to help others.

They had to do an investigation to make sure it wasn't Rylan's fault. Rylan's lawyer said I shouldn't have posted on Facebook to our friends and family before i went to the hospital but when Danny died I wished more than anything that someone posted about me and him so others knew I was involved. I never have regretted posting about it because Rylan got all the support I always wished I had. He had people to stand up for him instead of having to stand up to them all on his own, like I did.

Rylan's accident gave me purpose to put all my experiences to good use. Of course they found the man who was almost completely blind at fault. My family and Rylan did a farewell to the guy. His name was Charlie. He made a bad decision driving without a license when he couldn't see anything out of his right eye. It almost too Rylan's life along with him. All of us were glad it was Rylan who was protected by angels and that neither of them had anyone in their vehicles with them.

Rylan and I played a part both unwittingly, in the death of someone. It is a horrible club to be in but for me, it gave me purpose to help Ry just as I wished someone helped me in all the ways a death exacts.

After that I KNEW with confidence and no doubt, that everything happens for a reason and God never would make us suffer for no reason.

Everything has a reason and a purpose.

And I am so very blessed that some of my loss and suffering was able to help my little brother so much. And able to change his whole attitude and outlook.

What a gift!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #AnkylosingSpondylitis #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Fibromyalgia #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #CheerMeOn #Upallnight #IfYouFeelHopeless #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #MightyTogether #Migraine #MemoryLoss #RareDisease #RheumatoidArthritis #SuicidalThoughts #sciatica #Scoliosis #ShinSplints #BoneSplints

As the temperatures rise, those with chronic pain conditions often increased challenges. Whether you’re dealing with joint pain, muscle pain, fibromyalgia, neuropathy, or Complex Regional Pain Syndrome (CRPS), extreme heat can exacerbate symptoms and make daily life more difficult. Understanding how heat impacts your condition and learning ways to mitigate its effects can help you stay more comfortable and maintain your quality of life.

www.paintreatmentdirectory.com/posts/chronic-pain-management...

In the past year and a half, I’ve had 3 separate stress fractures in my metatarsals and another in my fibula. Why? My ankles are constantly subluxating and I end up walking on them when they are out of wack. I also have CRPS in both ankles, so constant pain is a thing. If I went to the doctor every time something slipped out of place, I might as well set up a cot there and just stay. Unfortunately, I’ve yet to figure out that magical tipping point when things go from simply being painful (as if it’s ever simple) to being harmful. My state of pain is constantly in flux so I’m constantly debating if this is just a flare (again, as if a flare can ever be “just”) or something more serious that requires attention. This has been going on for 30 years, so I tend to blow it off until the stupid stress fractures start causing new, acute pain. I’m back in a boot with another stress fracture, and man is this song and dance getting old. But where is that elusive magic line, that tipping point between “normal” pain and pain that indicates new damage is occurring? I’ve yet to find it. Let me know if you’ve found and where, I could use the assist.
#EhlersDanlosSyndrome #ComplexRegionalPainSyndrome #CRPS

In the past year and a half, I’ve had 3 separate stress fractures in my metatarsals and another in my fibula. Why? My ankles are constantly subluxating and I end up walking on them when they are out of wack. I also have CRPS in both ankles, so constant pain is a thing. If I went to the doctor every time something slipped out of place, I might as well set up a cot there and just stay. Unfortunately, I’ve yet to figure out that magical tipping point when things go from simply being painful (as if it’s ever simple) to being harmful. My state of pain is constantly in flux so I’m constantly debating if this is just a flare (again, as if a flare can ever be “just”) or something more serious that requires attention. This has been going on for 30 years, so I tend to blow it off until the stupid stress fractures start causing new, acute pain. I’m back in a boot with another stress fracture, and man is this song and dance getting old. But where is that elusive magic line, that tipping point between “normal” pain and pain that indicates new damage is occurring? I’ve yet to find it. Let me know if you’ve found and where, I could use the assist.
#EhlersDanlosSyndrome #ComplexRegionalPainSyndrome #CRPS