Complex Regional Pain Syndrome

Hi, my name is iPhil. I'm here because I am looking for ways I can help my wife with her CRPS condition and to understand more the effects it has on her and how we can improve our quality of life.

#MightyTogether

Have you ever had a day where you just want to throw your hands in the air and just say, “I’m done!” However, you know throwing your arms in the air aren’t possible in the first place because you hurt so very much. Also, you have way too many responsibilities as a parent and spouse to do just throw in the towel. I suffer from Rheumtoid Arthritis, Fibromyalgia, CRPS, Scoliosis, and Lupus and am currently in a massive flare. I’m exhausted and in pain, but I can’t rest or get comfortable. I work full time as a Special Education Teacher and have to walk from one side of the building to the other all day long and use every bit of my possible energy at work so when I get home I have no spoons/energy left when I get home. It’s also my daughter’s senior year in high school and she’s currently in the middle of softball with playoffs about to start.
I am not scheduled for an infusion until November and haven’t had one in forever due to going into liver failure and being diagnosed with Autoimmune Hepatitis over the summer. I swannee my immune system is truly trying to kill me! I’m so ready to feel better but don’t when that will be. Today is just one of those days when I feel like and realize this is possibly what the remainder of my life and body is going to feel like. Yuck! The bright spots in all of this is I have an amazing support system in my family including my husband, parents, in-laws, children, and friends. I also have my faith in Jesus and that He is watching over me and helping me through it all.
I apologize for my rambling. I just know only people who experience this truly understand the frustration and sadness of living in chronic pain.
Thank you for reading this far.
#ChronicPain #RheumatoidArthritis #ComplexRegionalPainSyndrome #Fibromyalgia #chronicmigraine #RaynaudsPhenomenon #AutoimmuneDisease #AutoimmuneHepatitis #Spoonie #exhausted