Your Hidden Power When You Have a Sibling With Special Needs

As the sibling of someone with special needs, it is common to feel overlooked within your own family. However, if you choose to consciously and deliberately re-shape your focus, instead of lamenting about the ways things should be, you will come to learn what you are truly made of.

You are not a typical sibling; you are a parent-sibling hybrid. As a result, you are on the fast track when it comes to psychosocial and spiritual development. While your peers are busy being children and adolescents, you will always carry a greater responsibility. At times, you may even envy other children’s carelessness. Be that as it may, if you refocus your mindset, be more compassionate and press on, the additional weight that you carry will only give you very broad shoulders.

You come to know the many shades of complex grief at a very young age. Always commit to allowing love and compassion in to irrigate these wounds, knowing that at first it stings, but it is the only way to truly heal.

Remember that you aren’t alone. Considering your role as caretaker, the last thing you are comfortable with is allowing others to help, but there are many people who can relate. You will find the discovery of common ground and sharing of experiences to be of great comfort on this journey.

down syndrome the mighty

You are an artisanal blend of grit and compassion. This is rare, sparkly and intense. Use this power wisely.

You are sharply tuned in to the needs of your special needs sibling. Your radar is set to pick up on the frequency of ignorance and to protect your sibling from the unfairness in this world. As a result, this love and protective instinct extends beyond your sibling to also include those who are marginalized, without a voice or in need. This compassion is an asset.

Your bond with your special needs sibling is beyond anything you will experience with anyone. Period. You are the translator, the protector, the caretaker, the nurse, the clown, the best friend and more. Exhausting? You have it in you. Trust me.

Nevertheless, your heart breaks every day. It breaks because it wasn’t you and because you cannot fix it, even if you know that nothing needs fixing. When you see someone who is like your sibling, you burst with joy and then your heart breaks for them and everyone like them.

At each milestone in your own development — your victories, celebrations and graduations — you will inevitably feel as if you are leaving your sibling behind a bit further. This is when that complex grief taps you on the shoulder to let you know that it is still there, standing on the edge of the dance floor, reminding you that in the silence of the evening’s end it will follow you home. If you can hold its hand, instead of running from it, it becomes a less daunting companion.

Your sibling has given you so many gifts: patience, compassion, awareness, mindfulness, a sense of humor and a greater capacity for love. Some people search their entire lives for such richness and depth in a relationship. Some never find it in this life. Your sibling will teach you so much if you slow down to watch and listen closely. Remember to keep your heart open. We never learn to love more deeply from experiences that are easy, and loving more deeply is what it is all about.

The Mighty wants to hear more about relationships and special needs parenting. Can you share a moment on your special needs journey that strengthened your relationship? If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio.

Want to end the stigma around disability? Like us on Facebook.

And sign up for what we hope will be your favorite thing to read at night.

Find this story helpful? Share it with someone you care about.

Related to Other

The Clothing Line That Lets You Know It’s OK to Talk About Mental Illness

Wear Your Label is a clothing company that aims to generate discussion around mental health and “ultimately end the stigma (in style).” The fashion line includes hats, T-shirts, tank tops and bracelets that feature slogans like, “Sad but rad,” “Stressed but well-dressed” and “Self-care isn’t selfish.” Photo credit Maya Sherwood Kayley Reed, 21, and Kyle [...]

A Complete Guide to Interacting With People With Special Needs

We thought we’d try to break this down in the simplest way possible. So here it is, in one easy-to-read graphic: a complete guide to interacting with people with special needs. It’s everything you’ll need to know. Maybe people will finally get it now. Maybe.  Want to end the stigma around disability? Like us on Facebook. And [...]

If I Never Hear My Nonverbal Son Say, ‘I Love You’

Earlier this week, I picked up my 5-year-old son, Quinn, from daycare and saw a giant pink poster with a statement from each child in his class noting their “favorite thing about their mom.” My son’s note was at the top, declaring that he “loves his mom’s great cooking.” Quinn is nonverbal, so he clearly [...]

A Letter to Alaska Airlines From an Autism Mom

Dear Alaska Airlines, This thank you note is overdue. I meant many times to sit down and write it, but life with a 6-year-old and 4-year-old took over once we were home, and I never did. However, given the awful experience that a fellow Oregon family just had with United Airlines asking them and their daughter [...]