If you could reach a million people with one message about autism, what would you say?

If you or a loved one is affected by autism, we want to hear your response to this question — in video form! Here ‘s a summary of our video on tips for filming your response:

  • When using a cellphone, hold it horizontally with two hands. Don’t hold it vertically or with one hand.

Hand Position

  • If using a video camera, be sure it is on a tripod or held by another person with both hands.

  • Try to answer the question in 5 – 15 seconds.

  • Use plenty of natural light. If inside, have your face towards the window. You don’t want the sun or a window behind you — it creates a silhouette and we won’t be able to see you!

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  • Record in a quiet place.

  • Speak clearly & concisely. Be sure your hand is not over the microphone. Play through the video before submitting to make sure you can hear yourself.

Please submit your video to video@themighty.com by Wed. Sept 9​. For parents of nonverbal children, you can help them share their message in whatever format works best. Please note: Every clip cannot be included in what is published. However, every response will be used internally, to help make our approach to autism coverage as informed & supportive as it can be.

 

 

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Leo Lytel is a 16-year-old stand-up comedian.

Leo, who lives in Washington, D.C., was diagnosed with autism at age 2, Syracuse.com reported. His diagnosis was later redefined as Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS).

Now, the star-on-the-rise, who has been performing comedy since he was 13, has made a splash during his first appearance on the NBC show “America’s Got Talent.” His comedy routine centers around being a self-proclaimed “awkward high school student.” He got the judges and the audience laughing and now he’s been voted through to the next round.

Check out Leo’s hilarious routine in the video below: 

For more on Leo’s story, visit his website.

 


There are so many debates and heated arguments over what causes autism. I, for one, stay away from the politics of it all. Why? Because my daughter was born with autism.

My husband and I got married, and we planned our children. We would have two perfect children, and we would love them no matter what sex they were, whether they had 10 fingers and 10 toes or not, no matter what they wanted to be when they grew up, no matter who they loved… we would love them just the same. Because they are our children. We made them; they came from us made with love. Our two beautiful creations, two beautiful girls: Anna and Zoey.

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We have our perfect family, A through Z!

Anna is 4 years old. She’s funny, smart and sassy, and she just came out of the “threenager” stage. There are no “terrible twos,” trust me — having a “threenager” will end you if you’re not ready for it. Heed my warning!

Zoey, our baby, is 2 years old, and she has superpowers. She can climb using just about anything in the house with absolutely anything she can find (anything, seriously! I’ve seen her use a pineapple as a step stool to climb to the sink). She has amazing problem solving skills, like none I’ve ever seen. She sings beautifully and is so happy.

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Anna has severe allergies, debilitating eczema and anxiety. She sees specialists to help with her flare-ups. Like Anna, I had horrible allergies and was hospitalized many times as a child. I also have severe anxiety. Anna’s still perfect, and when I ask her how she’s doing, I usually get, “I’m beautiful, Mommy!” And I say, “Yes you are, my baby!”

Zoey, well, she’s also a lot like me. She has obsessive compulsive disorder, she’s sensitive to sounds, people and situations, and she often feels like the world is too much for her. You see, I have OCD, anxiety and panic disorder. Zoey’s diagnosed with nonverbal autism. She doesn’t tell me she’s perfect; she shows me how perfect she is every day.

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For so long, I blamed myself for the genes I passed on to my children. I cried over it, I grieved over it and I hurt because of it.

They are my children. They came from me, and I adore them. Eventually, I realized blaming myself would be wrong. My husband loves me for who I am, and we love these beautiful children we created out of love.

Our genes created two beautiful, happy and loving little girls, and we wouldn’t change them for anything. They are who they are because of us. They were born this way… perfect.

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Follow this journey on Melissa’s Facebook page.


I barely remember the person I was before my son began to lead me on this journey. The lessons he’s taught me are infinite. I’m grateful for them.

There are no ribbons handed out. There are no ceremonies or hunks of parchment to hang on the wall. But after a decade of special needs parenting, I feel I’ve earned an advanced degree in what’s important in life. Some are large, some are silly, but here are the top 20 lessons I’ve learned (so far) on this autism parenting roller coaster.

1. You’re never as good as your best day or as bad as your worst.

2. Our biggest victories often follow short bursts of brutal tests of will.

3. Comparison is a vile, ugly monster.

4. My son is sneaky like a ninja and never far away.

5. It’s possible the people who know you best are thousands of miles away, and you’ve never met them.

6. I believe God has a sense of humor.

7. That plan you had don’t mean sh*@.

8. The sweetest sentence ever uttered: “Daddy, lay with me.”

9. Bacon, ketchup and a toasted hamburger bun is a perfectly acceptable meal at Chili’s.

10. If you get a server who approves this meal without judgement, tip him or her well.

11. Facebook can be your best friend or a bitter enemy.

12. You can’t do this alone. Ask for help.

13. Finding a babysitter you can trust enough to actually relax over dinner is like finding a gold brick.

14. Your kids are always listening. Trust me.

15. If he’s quiet, he’s either sleeping or pooping. And he never sleeps.

16. The human body can do amazing things on very little sleep.

17. When in doubt about what’s bothering him, start with sensory.

18. People are drawn toward positivity. But if you fake it, they know.

19. Puberty is a bit*@.

20. There is a bigger plan.

Father and son in a parking lot. Both are holding a toy.

A version of this post originally appeared on Bacon and Juice Boxes.

Do you have a story about your experience with disability or disease? Maybe a moment that made a big impact on you? Please send it to [email protected] and include a photo for the story, a photo of yourself and a 1-2 sentence bio. Check out our “Share Your Story” page for more about our submission guidelines.


As parents, we spend so much time wondering “What if I had…?” when it comes to our children. For example, what if I had ordered more speech therapy for my child? What if I had doubled up on their play therapy hours? What if I had enrolled them in that school for children who have autism instead of public school? What if I had spent more time interacting with them instead of watching TV/reading/sleeping? What if I had taken them to a different doctor? What if I had seen it sooner?

You can spend the rest of your life asking “what if I had” questions and, believe me, you will never find the answers. It’s impossible to know, unless you figure out how to rewind time. (And if you do, please let me know.)

So instead, I recommend an alternative to asking “what if I had” questions. Try asking “what if I hadn’t.” Anyone who knows me and will tell you I’m typically a glass-half-empty type of person. So trust me, it’s difficult for me to follow this exercise, too. But after all, we parents work so hard for our kids every single day and will continue to do so for the rest of our lives. This goes double for single parents, and quadruple (or more) for parents with children on the autism spectrum (or other disabilities). So give yourself a break for five minutes a day and ask yourself, “What if I hadn’t?”

What if I hadn’t recognized that something was amiss with my child? What if I hadn’t started asking questions and doing research? What if I hadn’t had them evaluated? What if I hadn’t taken them to therapy last week? Or the week before that? What if I hadn’t read that article on that intervention that offered a breakthrough for my child?

Sometimes we get so focused on what still needs to be done that we forget what we’ve already done. Of course it’s easy to get discouraged when you compare certain aspects of your child’s development to a neurotypical child. But it’s counterproductive to compare even two neurotypical children. Instead, compare your child to your child one year ago. Or two years ago. Chances are you’ve seen great progress.

So instead of asking yourself, “What if I had…?” ask yourself, “What if I hadn’t…?” and give yourself a pat on the back. Your child smiles more because of you.

kari sherwood the mighty

A version of this post originally appeared on Mommy First, Rockstar Second.

The Mighty is asking the following: What’s one unexpected source of comfort when it comes to your (or a loved one’s) disability and/or disease? If you’d like to participate, please send a blog post to [email protected] Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our “Share Your Story” page for more about our submission guidelines.

Want to end the stigma around disability? Like us on Facebook.

And sign up for what we hope will be your favorite thing to read at night.

 


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Via Lisa Stagliano/Santino’s Dragon Drawings

Santino Stagliano has loved drawing dragons from the age of 3 — two years before his autism diagnosis.

He didn’t speak in full sentences until he was 4 and a half years old, but he knew how to express his emotions through art.

“The reason he likes dragons is because they’re the only things that can breathe fire and fly,” his mom, Lisa Stagliano, told The Mighty. “They’re different, like him.”

Santino, now 10, draws dragons based on his emotions and events. Sad dragons may have tears in their eyes; red dragons depict anger. And the first time he said “I love you” was when he gave his mom a drawing of a mother and baby dragon.

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Via Lisa Stagliano/Facebook

This past April, when his mom posted a photo of one of his t-shirt designs to her Facebook page, in just one night, nine people requested to buy one.

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Via Lisa Stagliano/Facebook

The Stagliano family has since started a nonprofit and website called “Santino’s Dragon Drawings” to sell Santino’s shirts online.

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Via Lisa Stagliano/Santino’s Dragon Drawings

“It’s like a light switch went off in my son’s head,” Lisa Stagliano said. “We’ve seen nothing but miracles since this happened.”

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Via Lisa Stagliano/Santino’s Dragon Drawings

So far, Santino has hand drawn designs for more than 650 shirts. He donates half of his sales to The Center for Autism.

Check out some more of Stagliano’s drawings below and visit his Facebook page for more information.

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Via Lisa Stagliano/Santino’s Dragon Drawings
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Via Lisa Stagliano/Santino’s Dragon Drawings
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Via Lisa Stagliano/Santino’s Dragon Drawings
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Via Lisa Stagliano/Santino’s Dragon Drawings

Real People. Real Stories.

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