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A Nurse's Simple Act That Gave Me the Strength to Care for My Husband

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There are moments in your life that are seared in your mind. Even though some of the finer details may fade with time, your heart is permanently branded with the memory. This is the story of one of those encounters.

In early 2003, my husband, Matt, underwent a stem cell transplant to eradicate the mutant white blood cells coursing through his veins, aka leukemia. For those who are blissfully unaware of the process, let me provide you with a brief timeline of our experience:

What you don’t know will hurt you: The presentation of the 150-plus-page quick reference guide describing the ins and outs of a transplant.

Getting to know you: There’s test after test to prepare the candidate for the procedure, including, but by no means limited to, multiple scans, blood work, full-body measurements and psychological evaluations.

End of the world as you know it: A combination of total body irradiation and chemotherapy to exterminate the diseased bone marrow. The patient’s native immune system is severely weakened.

Knowing what’s good for you: Harvesting and transplanting of the donor’s stem cells. In Matt’s case, his sister was the gracious benefactor.

Don’t know what hit you: While waiting for the donor cells to graft into the recipient’s immune system, the patient is extremely vulnerable to life-threatening infections. He or she is moved to an isolation room for protection. My story takes place during this precarious time.

Not knowing whether to laugh or cry: Matt was given a 60 percent chance of not making it through the ordeal. It took eight weeks to see if he would overcome the odds.

During Matt’s entire hospital stay, he was never left alone. I would arrive each morning by 6:30 to catch his doctor on his early rounds. One or both of his parents would come each evening to relieve me and spend the night. The nurses at his facility were some of the best in their field, but with an entire ward of critical patients, they were stretched thin. Our devoted trio strove to pick up some of the slack. There was always someone there to hold Matt’s hand, fetch the vomit bucket or help him to the bathroom.

The days in isolation were some of the darkest. The patient can feel like they’re dying. All traces of their original bone marrow have been annihilated. This grueling prep must be completed in order for the donor stem cells to seize control. It’s the medical equivalent of a hostile takeover.

Waiting for the new cells to take root and multiply is like trying to make an industrial vat boil using only a birthday candle. Slow and tedious, you are constantly worried the candle might burn itself out before the water even reaches a simmer.

I would usually grab a light lunch to eat back in Matt’s room. Outside food, however, was not allowed in the isolation wards. Stubbornly glued to Matt’s bedside during this perilous phase, I skipped nearly every meal. When this absence of nourishment was combined with my lack of sleep and constant worry, I was in danger of needing my own hospital bed.

Whenever you spend any length of time in a medical facility, it doesn’t take long to know most of the nursing staff on a first-name basis. Most of them will take care of your loved one up to a week at a stretch. There are a few, however, that only appear for a day or two. These fleeting engagements can prevent you from ever learning the names of these particular providers of mercy. Such is the case of the nurse with kind eyes.

She came in one morning, introduced herself (again, can’t recall her name) and tended to Matt. She popped back in each hour just like every other nurse had been doing for the past week. After about five hours, she asked if I was going to lunch. “No,” I replied, “I’m afraid to leave.” The nurse looked a little concerned, but nodded as she left. I had been asked that question many times and thought nothing of it.

An hour or so later, she returned with a small paperback book in her hands. “Go eat. You need your strength,” she instructed. “I’m taking my lunch in here. He won’t be alone.”

She was of Asian descent and her gaze was sympathetic. Beyond that, I’m unable to recall her appearance. Nevertheless, I will never forget the effect she had upon me. My mind had been hissing with incessant anxiety. In the short amount of time it took to reach the cafeteria, I was able to settle my fears down to a steady purr. The kind-eyed nurse took on my “burden” for less than an hour, just long enough for me to rejuvenate my stamina for the weeks and months ahead. Her act of compassion still resonates more than a decade later.

O

The Mighty is asking the following: What’s one thing people might not know about your experience with disability and/or disease, and what would you say to teach them? If you’d like to participate, please send a blog post to community@themighty.com. Please include a photo for the piece, a photo of yourself and 1-2 sentence bio. Check out our Share Your Story page for more about our submission guidelines.

Originally published: October 8, 2015
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