Let’s Have a Conversation


Yesterday I apologized for a mistake we made that resulted in us removing a story from the site. I said we’re going to make a better effort to listen and respond to the community we claim to serve.

So let’s have a conversation.

We’ve started reaching out to people who have been vocal about the changes we need to make, but we want to open this up to anyone willing to have a constructive conversation with us.

If you’re one of those people, email us at [email protected] with your name and phone number, or we can discuss over email. A member of our staff will respond.


Find this story helpful? Share it with someone you care about.


Related to Other

Investigation Exposes How New York City Schools Treat Kids With Disabilities

A federal investigation into the accessibility of New York City public schools has turned up some alarming results. The two-year investigation, which was not previously disclosed to the public, concluded that 83 percent of New York City’s public elementary schools are not “fully accessible” to children with disabilities, The New York Times reported. It found that [...]

Why You Shouldn’t Say This Simple Word to Special Needs Parents

As I listened to the lyrics of “Grown-Up Christmas List,” I took a moment to reflect on my list this year. Just a few months ago, it would have consisted of only one thing: a diagnosis for my daughter. But a few weeks ago, we were given some information from our geneticist that has led [...]

To the Sibling Who Sacrificed for My Chronic Illness

Over the years, you’ve probably realized I’m sick a lot. At first, it likely didn’t make any sense. But as you grew up, you became more acutely aware of my signs, symptoms and a whole host of chronic illnesses. During the early years, neighbors, aunts, uncles and grandparents may have stayed with you while Mom [...]

All I Want for Christmas Is a Diagnosis for My Child

I’m not sure what is worse — to know the name of your child’s diagnosis or to know something is wrong and not know what it is. I’ve lived the “not knowing” option for two years now, and I would like to know how it feels to have a name for the collection of symptoms my child [...]