TLC's 'Two in a Million' Introduces People With Rare Conditions


TLC’s new series “Two in a Million” premiered on Wednesday — a show that pairs people who share a rare condition. In each episode, two people with “some of the world’s most unusual disorders” spend a week together “sharing hardships and incredible triumphs, visiting world-renowned doctors and finding answers to important questions,” according to a press release.

In its first episode, Gioavanni, 7, (who we’ve written about on The Mighty before), and Owen, 9, meet. The boys both have Schwartz-Jampel syndrome, a rare genetic disorder characterized by abnormalities of the skeletal muscles, abnormal bone development, permanent bending or extension of certain joints in a fixed position, and/or growth delays resulting in short stature, according to the National Organization for Rare Disorders (NORD).

MIGHTY PARTNER RESOURCES

Former Raw TV intern Jonna McIver came up with the show after filming a student documentary on Owen.

“When we saw (the film) in the office, it made us all cry,” Adam Hawkins, senior vice president of development at Raw, told CNN. “We realized that it explored ideas about loneliness and isolation that we then worked up into a bigger series idea. We wondered, what if Owen had ever met anyone else with the same condition — and what it would be like if he did.”

Thanks for joining us for #TwoInAMillion last night, we hope you enjoyed the story. Here’s more information on Owen & Giovanni’s disease, Scwartz Jampel Syndrome (and some adorable photos from last night’s ep) Posted by TLC on Thursday, April 7, 2016
  This season’s six episodes will also feature people with ectodermal dysplasia, an inherited multisystem disorder that typically affects the hair, teeth, nails, sweat glands and/or skin; lamellar ichthyosis, a genetic skin disorder; osteogenesis imperfecta, a group of disorders affecting the connective tissue and characterized by fragile bones; Jarcho-Levin syndrome, a genetic disorder characterized by distinctive malformations of bones of the vertebrae and ribs; and Goldenhar syndrome, a disorder that involves malformations of the eyes, ears and spine.  

Related to Rare Disease

Learning to Live in the Moment With My Daughter With a Rare Disorder

In August 2012, just one month after my daughter’s first birthday, I found myself sobbing hysterically in my doctor’s office following a series of scary panic attacks. “Was there much stress in my life?” she asked. “Yes,” I responded. “My grandfather recently passed away, and the chief of staff at work had suddenly died just [...]
baby wearing striped onesie sucking her thumb

8 Things I Wish I Knew When My Child Was Diagnosed With a Rare Disorder

In less than two weeks, we will be celebrating the one-year anniversary of our daughter’s diagnosis day. When she was 8 weeks old, after a month of being officially diagnosed with epilepsy, we learned the cause of her seizures was due to a genetic mutation known as CDKL5 (a rare genetic disorder that results in difficult to control early [...]

3 Things I Want to Tell the Mom Receiving a Rare Diagnosis

Today may feel like the hardest day of your life. Whether or not motherhood is something you planned and dreamed about, you likely fantasized about the life of the person you carried inside of you. Would she look like me and have red hair, enjoy gymnastics and cheerleading, have a great sense of humor, and/or become the first [...]

Dear Doctors: Please Don’t Call Our Daughter One of 'Those Kids'

Nearly a year ago, my husband and I were the happiest expecting parents ever. We were taking pictures of my huge baby belly shortly before contractions started and we had to head to the hospital. When I look at these pictures, I remember exactly how I felt, and I know that the smile on my [...]