🥺😢😭Welp, my pain 'management' appointment went HORRIBLE!!!
I was told that they had done EVERYTHING to help me (please note they have suggested only two forms of the same medication prescribed and have not actually Done ANYTHING. I have had to do all the work including going off meds on my own and despite valid concerns from me they never listened until it was too late. I am the one facing all the pain. And the head doctor has told me on all occasions that he doesn't know how to help me and he is out of ideas). I was told by my so called PAIN MANAGEMENT doctor that my pain is mostly. in my head and so I need to see a psychologist.
They doubled my pain medicine dose but said "it isn't going to work anyway" and tried to take the $400 medicine my parents just paid for because the dosage was different now.
He told me he was sure I have really bad pain but I am not correctly prioritizing how to help myself and since I wasn't he was going to remove the referral for neurology even though I reminded him that my hands don't work and I have severe migraines and that needs to take precedence. (I didn't bother to tell him my severe memory issues and other worsening symptoms.)
He seems to think he knows better as to how to help me and how to tell my parents where to put their money since "everything costs so much that all the money should go towards a therapist to help cure me of all this pain that is so clearly in my head" although he didn't tell me how it got there! 😂😡🤬😭😭😭 I don't swear at all but I came MIGHTY close guys.
It seems I am the only one in South Carolina pain management that wants to help myself.
In ALL my LIFE I have never been told that my pain isn't real until we moved here.
How is it they think that in my 15yrs of constant pain and 3 therapists I have come across, no one said my pain was mostly just in my head???
And I couldn't even stand up for myself because I still haven't been able to get a new pain doctor or Rheumatologist and am dependent on this pathetic help from the drug I never would have had in my body until they introduced it to me.
I am so very very hurt and not just from my pain but from cruel words and uncaring 'professionals' who have never had severe chronic pain in any portion of their life.
And I had to forgo breakfast for that!
Thank you Mighty friends for surrounding me with your goodness and helping lift me up as life gets evermore worse. I am honored to be on this platform with you all.
Truly thank you so much for your support and love. I need and will need it as I try my best to pull myself back out of the waves again. I have definitely sunk deeper than ever before.
But as long as the sun keeps rising for us to admire, so do I promise to keep putting one shaky step in front of the other(metaphorically of course 😅).
Though I promise also to rest more often. You guys were right that sometimes I do have to take a week off to rest though I think of everyone on here daily.
Love you all my Mighty family. You all have more power than you know. Thank you for existing 💖 💖💖
For more check out my blog @ dailylight.blog
#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #CheerMeOn #MentalHealth #Insomnia #Lupus #Lymphedema #MightyTogether #PosturalOrthostaticTachycardiaSyndrome #RareDisease #SuicidalThoughts