Rare Disease

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    Question
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    How have you grown as a person?

    There’s a thought-provoking Rumi quote that reads, “”Yesterday I was clever, so I wanted to change the world. Today I am wise, so I am changing myself.” Personal change is another way to think about personal growth — the act of bettering ourselves and tapping into who we were always meant to be.

    How have you grown? Are you more patient than you used to be? Living in the moment more? Putting your art out into the world? Accepted your illness after years of denying/push back against its existence?

    Share with us in the comments (and remember: sometimes the most important growth is the kind others can’t see).

    #MightyMinute #CheckInWithMe #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #Parenting

    Question
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    What’s a change you’re excited to make? What’s standing in your way?

    We’ve spoken a lot this week about the ways in which change happens unexpectedly or can cause anxiety and stress. To close out the week, let’s share the changes we’re excited to make! This can be anything from dyeing your hair a fun color to adopting a new furry friend. If there are any obstacles standing in the way of making this change happen, feel free to share those as well. Let’s cheer each other on!

    🪶 P.S. Here’s a great quote about change from the incredible James Baldwin — maybe it’ll inspire you on your journey!

    💪 “Not everything that is faced can be changed, but nothing can be changed until it is faced.”

    #52SmallThings #CheckInWithMe #MentalHealth #Selfcare #ChronicPain #Depression #ChronicIllness #RareDisease #Disability #Autism

    Post

    My Walk

    #RareDisease hello please let me know if anyone else has my condition.
    Lupus and CREST syndrome.
    Each day I get up is always different.
    Pain and my skin and nerves are not happy.
    My gut is so very difficult.
    My doctor told me in in 2015 that I had CREST syndrome my mi

    Post
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    What brings you the most shame?

    Shame is a difficult feeling to have. Coming from personal experience, shame can be debilitating and hard to move past. Right now I'm battling the shame that comes with having a mental health condition and not seeming like I have things "all put together."

    🌹 P.S. If shame is getting you down right now, know that you're not alone and it's OK to not feel OK. We can take baby steps together in getting to a better place. We won't feel this shame forever.

    #CheckInWithMe #Grief #MentalHealth #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #ObsessiveCompulsiveDisorder #PTSD #EatingDisorders #ChronicIllness #RareDisease #ChronicPain #Spoonie #EhlersDanlosSyndrome #CrohnsDisease #Cancer #Migraine #Fibromyalgia #MultipleSclerosis

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    If you can try something again for the first time, what would it be?

    I think I would want to go back to college again. But this time around I would want to know what I know now about self-care and mental health.

    How about you?

    #DistractMe #CheckInWithMe #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Migraine #Depression #Anxiety #BorderlinePersonalityDisorder #ObsessiveCompulsiveDisorder #PTSD #RheumatoidArthritis #Fibromyalgia

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    If you’re currently undiagnosed, what’s the most frustrating part about medical appointments?

    Being undiagnosed has its host of challenges, which can include (but is absolutely not limited to) what to expect during medical appointments: from umpteen physical examinations to never-ending appointments; from the slew of prescription medications to the constant shoulder shrugs… none of it feels great!

    What do you find to be the most challenging thing about visiting the doctor as someone who is undiagnosed?

    #Undiagnosed #CheckInWithMe #ChronicPain #ChronicIllness #RareDisease #MentalHealth #Spoonie

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    Scream into the void with us (you know you want to!).

    Welcome to our Mighty void, where all thoughts, complaints, noises, and rants are accepted. Something you want to get off your chest? What’s weighing heavy on your mind?

    Drop it into the void (it might even make you feel better). 🖤

    #MightyMinute #CheckInWithMe #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #Parenting

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    Deep breathing

    Normally when we breathe, we think we are breathing fully. But now that you are conscious of it, take in a big breath and see how much more room there is in your lungs to fill. When you practice bigger breaths, notice how this not only calms your body, but it also takes your mind off of things like anger. Does this help anyone?

    ~ Thanks to all. Thanks for all. ~

    Speaking of thanks for all, I was hoping we could acknowledge everyone who comments below. I know it seems like a small gesture, but many people here have never opened up to anyone before and being open and honest with strangers can be quite scary. So, if we could show our gratitude by giving their comment a simple reply or heart, I’m sure they would really appreciate your team support. What do you say?

    #MentalHealth #Depression #Suicide #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #OCD #ADHD #Fibromyalgia #EhlersDanlosSyndrome #POTS #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Schizophrenia #ComplexRegionalPainSyndrome