To Anyone Who Has a ‘Thing’ You Don't Like to Talk About

I have the best people.

I have people that save me seats at church, places at yoga and cupcakes.

I have people to work out with, not work at work with, talk Netflix with and not talk at all with.

I have people to drink coffee with, to drink tea with and to drink wine with.

I have people to eat sushi with, pie with and lunch after church with.

I have people to laugh with until my stomach hurts and people I can call when I want to cry. Usually they are the same people.

I have people that have seen me in my yoga pants, my pajama pants and even a select few who have seen me in a swimsuit.

I have people that I share good music with, good books with and good food with.

I have people to go on adventures with and people to do absolutely nothing with.

I have people I can count on — to show up, to bring coffee or to always be late.

I get to live with three of my favorite humans ever (except when they are fighting or snoring).

I could go on… but I think at this point I am just bragging.

I haven’t always. It takes time and intention to build and maintain this kind of community. Sometimes it even takes a while to notice. I know mine is there and I am so ridiculously grateful for it.


The last time I went to the doctor, he asked me about symptoms and medications. He did some tests. My voice did not waver as I talked about pain and surgery. Just before I left my voice shook a little as I told him that it was isolating. That I don’t know anyone else. That I don’t know who to ask questions or commiserate with. He didn’t have a prescription to give me for that. Sometimes I fork over a copay of $52 a session to talk to someone else. I say all kinds of things, but mostly it comes down to this: I feel alone.

I had surgery in July. It helped. Most days are good, but some days there is still a significant amount of pain and there are so many things that I have given up or am now afraid of, even simple things like the wind. I rarely want to talk about it. Most of the time I don’t even want people to know.

But I so want them to get it.

People can’t get what you don’t tell them.

I am only alone because I chose to be.

And the truth is I am not alone at all.

My “thing” is physical pain.

I know people whose thing is depression.

I know people whose thing is addiction.

I know people whose thing is body image.

I know people whose thing is singleness.

I know people whose thing is cancer.

I know people whose thing is a hard marriage.

I know people whose thing is fertility.

We all have our thing.

Yesterday I saw a video on Facebook that nailed my particular thing.

The first half of the video was a girl talking about how she spent the first half-dozen years with her thing not telling people, of hiding it. How she was less afraid of excruciating pain and more afraid of not being able to do things she loves. I wanted to, but I didn’t post it on my wall. Which is ridiculous, because I post all kinds of funny, embarrassing things about myself. Part of me wanted to share it, but then some other part wanted to hyperventilate just thinking about it. 

What I really didn’t want to do is own it.

What I really didn’t want to do is to admit the fear.

What I really didn’t want to do is burden others with my burden.

What I really didn’t want is for people to identify me with my thing.

My thing has enough power over my life that I feel like talking about it more only gives it more power.

But what gives our things power is silence.

What gives our things power is isolation.

I think I have been waiting on someone to have my exact same thing.

Everyone wants to hear “me too,” but maybe our “me too’s” don’t have to be exactly the same to get it. To stop being alone.

We all have our thing.

If you are lucky enough like me, then you also have your people.

I am a girl who used to pride herself on going first.

So let me go first and tell you…

I have this thing. It eats at me. It isolates me. It exhausts me. 

It is not who I am.

Yours is not the same, but I bet you sometimes feel the exact same way.

I bet lots of people do.

Follow this journey on I Don’t Believe in Grammar.

 The Mighty is asking its readers the following: What’s one secret about you or your loved one’s disability and/or disease that no one talks about? Check out our Submit a Story page for more about our submission guidelines.

*Sign up for our Chronic Illness Newsletter*

Find this story helpful? Share it with someone you care about.

Related to Trigeminal Neuralgia

Acid Doodle Background Pattern

Dear Trigeminal Neuralgia, the 'Suicide Disease,' I'm Not Giving Up

Dear Trigeminal Neuralgia, This time last‎ year I never even knew you existed. Now I know you are so very real. You’re “the worst pain known to mankind,” “the suicide disease.” You live up to these names. Some people with you find no relief and feel suicide is their only way out of your physical, emotional [...]
man and woman sipping cups of tea with straws

The Question You Should Ask Before Trying to Cheer Someone Up

The other day, I was feeling kind of meh. It wasn’t depressed exactly — just the opposite of confident. Sometimes, when I have several days in a row in which I get migraines and I don’t socialize, I can feel a sort of malaise that affects my confidence about work. When my husband came home, [...]
Molly's college graduation day! Determination conquers all.

3 Ways Having a Disability Positively Influences My Life

The world often associates disabilities with sentiments of pity or negativity. Society conditions people to think we are somehow “damaged” or incapable of leading a normal, fruitful life because we may not do everyday tasks quite the same as others. I’d like to think living life a bit differently has made me more aware of [...]
son walking from behind

The Day After Your Child's Autism Diagnosis

Your child is on the autism spectrum. No matter how you try to prepare, even if you already “know,” going through the diagnosis of your child is hard. What does this mean for my child? How is this going to affect our family? Can we afford what he’s going to need? How do I help [...]